Hemlibra availability with Corona Virus
Following concerns from our community, Roche have issued the following statement about supply and availability…Read more
Treatment Posts
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NHS England decisions on new treatments for bleeding disorders
The first artificially made treatment for people with severe types of von Willebrand disease (VWD)…Read more
The Haemophilia Society welcomes NHSE announcement on Hemlibra
The Haemophilia Society welcomes NHS England’s announcement today that they will now fund a new…Read more
Share your views with NHS England
NHS England is considering making available a new treatment, Emicizumab (Hemlibra), as an alternative to…Read more
Advocating for Access to New Treatment
This is an exciting time as new treatments and new treatment approaches for bleeding disorders…Read more
Announcement from NHSE on Inhibitor Treatment
NHSE has announced that Emicizumab (marketed as Hemlibra) can be provided to Haemophilia A patients with…Read more
New report explores better outcomes for young people with haemophilia
Haemophilia 180 – Taking control A better future for younger people with haemophilia The Haemophilia…Read more
Early Access for patients with inhibitors to Emicizumab
The MHRA has announced that Emicizumab (previously known as Ace910 and now marketed in the…Read more
Issue identified in BPL plasma products production
The Department of Health (DH) published a statement this morning regarding an issue identified during a…Read more
Bears4Rare: experts call on government to provide fair and fast access to treatments for rare disease patients
Rare conditions affect approximately 1 in 17 people in the UK.1 Although they are living…Read more
UK launches FibCLOT®▼ LFB’s human fibrinogen concentrate
LFB Biopharmaceuticals announced today the UK launch of FibCLOT, its human fibrinogen concentrate. This follows…Read more