Update from the European Haemophilia Consortium
Following a meeting hosted by the European Haemophilia Consortium it has been confirmed that there…Read more
Healthcare Posts
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Hemlibra availability with Corona Virus
Following concerns from our community, Roche have issued the following statement about supply and availability…Read more
NHS England decisions on new treatments for bleeding disorders
The first artificially made treatment for people with severe types of von Willebrand disease (VWD)…Read more
Scotland step closer to becoming first country in world to make sanitary products free for all women
Last month we welcomed a new scheme that allows schools and colleges in England to…Read more
Response from NHSBT regarding Corona Virus and blood safety
We understand that our members may have concerns about blood and blood product safety and…Read more
Want to share your experience of living with, or caring for children with haemophilia A?
We are working with Roche Products Limited and Chugai Pharma UK Ltd to help recruit…Read more
Roche/Chugai statement regarding particles in vials of Hemlibra®▼ (emicizumab)
During a routine examination of drug product batches, as part of our quality assurance systems…Read more
BBC2 documentary on vCJD
Following last night’s BBC2 documentary on vCJD – Mad Cow Disease: The Great British Beef…Read more
Getting information from UKHCDO – an update
The United Kingdom Haemophilia Centre Doctors’ Organisation (UKHCDO) has produced an explanatory document about patient…Read more
Setting priorities for bleeding disorders – final report published
From 2015 -2018 The Haemophilia Society came together with a wide range of charities, clinical…Read more
Response to concerns about Emicuzumab
Recently reports have been shared on social media about deaths relating to a new treatment…Read more
Share your views with NHS England
NHS England is considering making available a new treatment, Emicizumab (Hemlibra), as an alternative to…Read more