Dental care – what’s your experience?
We’re launching a survey to find out more about dental care for people with a…
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Rare and BDUC working group to be formed
We’re immensely proud of the fact we have members with a wide range of bleeding…
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First steps towards self-treatment
Learning to self-infuse is a milestone moment for anyone who relies on intravenous treatment to…
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New chapter for cycling hero
Although Alex Dowsett spent 12 years at the top of professional cycling and is the…
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Haemtrack’s web app launched
Haemtrack’s new website app goes live today [20 September], replacing its phone app. The new…
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Ed’s rowing for gold
Rower Ed Fuller has set his sights on a gold medal at the 2024 Paralympics…
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VWD awareness day in Sheffield
More than 50 adults with von Willebrand disorder (VWD) got together for a day of…
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Travelling with haemophilia: Josh’s trip to Thailand
Josh Taylor-Rose, our Youth Ambassador and member of the newly-formed Youth Board, has just spent…
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‘I made the choice to take my life back.’
For Ros Cooper, finding support for her mental wellbeing has been challenging, but it is…
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Jacob, superstar fundraiser!
When seven-year-old Jacob decided to raise £100 for the Haemophilia Society he had no idea…
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Tegen teaches school friends about haemophilia
We are so impressed by 7-year-old Tegen, from Wiltshire, who gave a talk to her…
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Show your support on Rare Disease Day on 28 February
In the UK there are over 36,000 people with a rare genetic bleeding disorder such…
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