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Rare bleeding disorders

Bleeding disorders are conditions where the blood fails to clot properly. They are rare and nearly always inherited. Most are caused by blood-clotting factor that doesn’t work properly or is missing altogether. There are also conditions caused by a problem with the platelets – small cells in the blood involved in clotting.

Each related bleeding disorder is named after the clotting factor that is lacking. There are many different types of bleeding disorders because there are many different proteins (factors) involved in the normal blood clotting, which can have a reduced number, not work properly or both.

The outlook is now the best it has ever been for people with bleeding disorders. Medicine has made huge advances. There are still no cures, but with modern treatment children born now with a bleeding disorder can live a normal lifespan and enjoy the opportunities in life that anyone else has.

More information is available in our Rare bleeding disorders booklet.

Guideline for the diagnosis and management of the rare coagulation disorders is also available

Disclaimer: This website is for information purposes only and provides an overview of the subject matter covered. It is not a substitute for professional medical advice, diagnosis or treatment. Always consult your haemophilia centre for specific advice on your healthcare concerns. The information on this website is subject to change without notice. 

Types of bleeding disorders

You can find more details on different types of bleeding disorders in our Rare diseases…
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What causes a bleeding disorder?

Bleeding disorders are generally inherited, meaning they are passed from parent to child in their…
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Symptoms of a bleeding disorder

The symptoms will vary, depending on the exact type of bleeding disorder you have. But there…
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Diagnosing a bleeding disorder

Depending on the type of bleeding disorder and your family history, you may know you…
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Treating and managing a bleeding disorder

There are many different types of treatment for rare bleeding disorders, which is appropriate for…
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Bleeding disorders – pregnancy and childbirth

If you have an inherited bleeding disorder, you may want to see a genetic counsellor…
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