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APPG on Haemophilia and Contaminated Blood 8th February

The APPG on Haemophilia and Contaminated Blood met last week on the 8th February to discuss the Agenda below.

Agenda

  1. Introductions and Apologies
  2. Update on the call for a Hillsborough-style independent panel
  3. Passporting to benefits for those affected by the Scandal
  4. Developments in the implementation of the new Support Scheme
  5. AOB

 

The actions agreed in the meeting included that the Chairs will be writing to Bishop James Jones, Jeremy Hunt and the current support scheme administrators. We agreed to invite representatives from the current scheme administrators to address the APPG.

The members and other individuals present discussed a proposed submission to the Health, Disability and Work Green paper regarding passporting to certain benefits for individuals affected by contaminated blood. The proposal, incorporating some changes discussed at the meeting is available here. We would welcome further comments on the proposed submission. We would ideally like to receive all comments by noon on Wednesday 15th Feb so the submission can be finalised prior to the close of the consultation.

Members agreed to announce the next three meetings of the APPG shortly with dates to be confirmed in March, June/July and November. Other meetings may also be scheduled as required.

Members also agreed to proposals to better include the contaminated blood community and campaign groups. The APPG mailing list now includes representatives from campaign groups and other affected individuals. We hope that a number will be able to join each meeting of the APPG.

The full minutes of the meeting are available here.

Jefferson Courtney

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