Newly Diagnosed Families Weekend 2025

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Our Newly Diagnosed Families Weekend is a special event exclusively designed for families who have received a diagnosis for their child in the past 4 years. This weekend provides a fantastic opportunity for families to find support from a community of people who understand what they are going through. You will get a chance to connect with others who are going through similar experiences. This event will also feature informative sessions from experts in the field, where you can learn more about your child’s bleeding disorder. Additionally, you will get to meet our youth ambassadors and gain valuable insights from them.

It will be taking place from the 04 – 06 April 2025. Location to be confirmed.


Childcare is available while you attend the sessions. The team’s diversity and differing experiences mean they can cater and care for all age ranges, from two-week-old babies to teenagers. They work with you to guarantee that those charged to their care have the best possible time and are entertained at the most key parts of this event. All childcare staff hold an enhanced DBS certificate, ensuring the professionalism and character of those looking after your children. 

Safe and Sound is a highly regarded childcare provider that has provided excellent childcare services at our last four newly diagnosed weekends. They have shown exceptional care and attention to the children in their care, receiving outstanding feedback. Parents have consistently praised the warm and friendly atmosphere that Safe and Sound creates and have noted that their children feel comfortable and happy in their care. The team goes above and beyond to ensure that children’s needs are met and that parents have complete confidence and reassurance that their child is in good hands.


As places for our newly diagnosed families weekend are limited, we encourage families to register their interest below as soon as possible to be added to our waiting list.

Our team will review each application carefully and ensure that families who are selected for the event will receive an invitation in due course. We understand this event is important to many families and will do our best to accommodate as many as possible.

If we are unable to offer a place for the upcoming event, we will keep families on our waiting list and notify them of any future events or opportunities. We appreciate your understanding.

Families attending must be members of the Haemophilia Society. If you are not a member, please click the link to join: Become A Member.

You can read more about our Newly Diagnosed Families Weekend here.

    Event Registration - Newly Diagnosed Families Weekend

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