First Gene Therapy Treatment for Haemophilia to be Licensed

Last week the European Medicines Agency recommended that a license be granted to Roctavian a gene therapy…
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Cell and Gene Collective calls for more political leadership to ensure patient access to gene therapies

The Haemophilia Society is part of a group of rare disease charities called the Cell…
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Inhibitors are a complication of haemophilia treatment, in which the patient’s body begins to produce…
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Last month clinicians and researchers from across the world gathered virtually at EAHAD, a congress…
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In February, the European Association for Haemophilia and Allied Disorders had their annual meeting. We…
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Thanks to advances in the treatments made available in the last few years, developing inhibitors…
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The Health and Care Bill, which is currently being debated in parliament, has the potential…
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Last year the Government announced plans for a new fund to allow people with rare diseases in…
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We’re proud to have launched an easy-to-use online symptom checker to help women and girls with heavy periods find out if…
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We are beyond excited that British professional cyclist and Haemophilia Society member Alex Dowsett will attempt to…
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The European Haemophilia Consortium (EHC) has launched a really useful mobile app as an information…
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Our Policy and Public Affairs Manager Jeff Courtney was at the Conservative party conference this…
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