Setting priorities for bleeding disorders – final report published
From 2015 -2018 The Haemophilia Society came together with a wide range of charities, clinical…Read more
Written by Aaron Dennis
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Response to concerns about Emicuzumab
Recently reports have been shared on social media about deaths relating to a new treatment…Read more
Share your views with NHS England
NHS England is considering making available a new treatment, Emicizumab (Hemlibra), as an alternative to…Read more
APPG Inquiry into Access to Treatment – Call for Evidence
The All-Party Parliamentary Group on Haemophilia and Contaminated Blood has launched an Inquiry into the…Read more
Advocating for Access to New Treatment
This is an exciting time as new treatments and new treatment approaches for bleeding disorders…Read more
Managing Treatment and Access to Products post Brexit
Many of our members have expressed concerns about how access to the treatments they require…Read more
Supporter story – Father is inspired to run the London Marathon after his son is diagnosed with haemophilia A
Hello I am Sam and this is our story about our youngest son Jaxon and…Read more
Supporter story – Caroline Duff and her son Sean take on the London Marathon
I met my husband on the first day of Freshers week at Leeds University in…Read more
Recruiting members to join haemophilia centre review teams
For many years haemophilia centres have been audited every 3 years to assess the quality…Read more
Initial Diagnosis Report Launched
Early this year The Haemophilia Society began a project to understand the experiences of families…Read more
Monthly updates launched
So much happens here at The Society, and we want to share all of these…Read more
Announcement from NHSE on Inhibitor Treatment
NHSE has announced that Emicizumab (marketed as Hemlibra) can be provided to Haemophilia A patients with…Read more