Finding out that you or your child has a bleeding disorder can be a stressful experience, and we’re here to help you to make sense of it all.
This section aims to answer some of your questions and let you know how we can support you and your family, now and in the future. By joining the Haemophilia Society, you are part of a supportive and knowledgeable family, full of people who’ve been through what you’re going through and want to help.
Although many assume only children are newly diagnosed with bleeding disorders, many women do not get a diagnosis until adulthood. Wherever you are in your journey, we welcome you. We have a wide range of leaflets and resources to help you better understand your condition. We organise a range of events each year that provide information and support.
Newly Diagnosed Families Weekend
Newly Diagnosed Families Weekend gives practical and emotional support for the whole family, including dedicated time and space to meet and learn from medical experts and each other. These events are aimed at parents who have recently found out their child has a bleeding disorder and bring together experts in bleeding disorders so that families get the help they need to ensure their child receives the best possible care.
Talking Red – support for women and girls with bleeding disorders
Our Talking Red campaign and annual event offer women and girls with bleeding disorders a space to share experiences and knowledge and form a support network.