Clive Smith

President

Clive became President of the Haemophilia Society (THS) in November 2024, having served for five years as our Chair and nine years as a trustee. 

As chair, Clive guided THS through one of the most challenging periods of our history, as we dealt with the impact of the Infected Blood Inquiry and its outcomes, as well as a rapidly changing treatment landscape.  

The youngest of three brothers, all with severe haemophilia A, Clive is passionate about raising awareness within the bleeding disorders community of what can be achieved. He has never wanted to be defined by his haemophilia and is keen to support everyone with a bleeding disorder to reach their full potential. 

Clive is a qualified barrister who has practiced criminal law for 11 years. In 2015 Clive left full-time practice and now works part-time, teaching and training solicitors and barristers. 

Clive is active on the global bleeding disorders stage, and has spoken at both the World Federation of Hemophilia’s (WFH) and the European Haemophilia Consortium’s (EHC) conferences in recent years. He chairs the WFH’s Youth Committee and in 2021 was appointed to the UK Rare Diseases Framework Board as a patient representative.   

Despite arthritis in his ankle, Clive prioritises his fitness. He ran the Brighton Marathon in aid of Great Ormond Street Hospital, has competed in triathlons and completed four Ironman triathlons.