Below you’ll find advice that will help you live well with a bleeding disorder.
Keeping active is essential for a healthy lifestyle for everyone with or without a bleeding disorder. Moderate exercise has even more therapeutic benefits for those with haemophilia since it will help build a strong musculoskeletal support to offer some protection from the wear and tear of daily life.
In general any risk factors associated with sports are outweighed by the inherent benefits of staying active. However your doctor or physiotherapist is the best person to check with so make sure you get the advice of a medical professional who knows your specific circumstances. For example, you may require prophylactic treatment ahead of participation, or if you have a vulnerable joint you may find high impact sports off limits.
Just as important as maintaining an active lifestyle is also finding time for recuperation and rest, particularly when a bleed necessitates it. A specialist physiotherapist who specialises in haemophilia can give advice on what to do to maintain or improve health and fitness regardless of a person’s age or their joint problems. They can tailor an exercise programme that will maximise activity without doing damage to problem joints or muscles.
There are pamphlets available to help dentists treating patients with haemophilia. You can download the dental advice here
Dr Anna Brazier, Consultant Clinical Psychologist at Cardiff’s Arthur Bloom Centre for helping us to produce this information has helped us produce content on how to keep positive when dealing with the anxieties of a bleeding disorder
The below pointers will help direct you to the right resources, whether you are someone with a bleeding disorder, a parent or carer.