External Resources

We will provide links and downloads of relevant publications from other organisations here.

The information provided in this newsletter from EHC covers recent major developments and is divided by specific type of disorder for which there is an update to report. The newsletter will be updated periodically. Please see www.ehc.eu/novel-treatment-products-newsletter/ for more information and read the first newsletter below.

The Journal of Haemophilia Practice: The impact of heavy periods on women with a bleeding disorder

Impact Of Lockdown Service Capability Of UK Haemophilia Centres

UKHCDO-Annual-Report-2020-2019.pdf

Novel treatments in haemophilia and other bleeding disorders – a periodic EHC review 2019

Novel treatments in haemophilia and other bleeding disorders – a periodic EHC review 2020

Setting Priorities For Bleeding Disorders – James Lind Alliance (JLA)

Haemophilia 180 – Taking control – A better future for younger people with haemophilia

Expert report to the Infected Blood Inquiry: Bleeding Disorders and Blood Disorders