Rare & Unclassified Bleeding Disorders Day
People affected by rare or unclassified bleeding disorders can feel some of the most isolated in our community, but this is a chance to get together and explore your unique issues. Speakers will also share their expertise.
Topics so far include :
| The diagnosis and management of rare bleeding disorders |
| How to become an expert patient – self-advocacy. |
| European Rare and Inhibitor Network (ERIN) – living with an ultra rare bleeding disorder |
| Confirmed speakers |
| Dr Gill Lowe, Consultant in Haemostasis and Thrombosis University Hospital Birmingham |
| Julia Spires, Haemophilia Clinical Nurse Specialist, Great Ormond Street Hospital for Children, London |
| Kristine Jansone, European Haemophilia Consortium |
The day will also be a great opportunity to meet others with similar experiences, particularly if you are affected by rare bleeding disorders.
We are not able to offer childcare at this event.
Tickets are FREE and available from Monday, 17 October 2022, via Eventbrite
Refreshments and lunch are included.
Hotel details:
Wheelchair accessible.
Air-conditioned, free Wi-Fi and restaurant.
Car parking with 25 spaces (cannot be pre-booked, and charges apply).
The hotel is a short walk from Canary Wharf Underground station. The Elizabeth line connects to The O2 Arena in under 10 minutes and West End in about 20 minutes. The Docklands Light Railway, London City Airport, and Canary Wharf Pier are all within five miles.