Newly Diagnosed Families Weekend

  • FREE for members
Members Only

Our Newly Diagnosed Families weekends (NDFW) are free events that support parents who have recently found out their child has a bleeding disorder. We bring together experts in bleeding disorders care to share knowledge and experiences so families get the help they need to ensure their child receives the best care.

Our NDFW events are open to families with a child/children (aged 0 to 17 years) diagnosed with a bleeding disorder in the past four years.

Our sessions include presentations and demonstrations, giving everyone a chance to ask questions and find out what they need to know. It allows you to find out more about your child’s bleeding disorder. The weekend aims to give a brief overview of the bleeding disorders that affect the families attending each event.

Childcare is available while you attend the sessions. The team’s diversity and differing experiences mean that they can cater and care for all age ranges, from two-week-old babies to teenagers. They work with you to guarantee that those charged to their care have the best possible time and are entertained at the most key parts of this event. All childcare staff hold an enhanced DBS certificate, ensuring the professionalism and character of the people looking after your children. 

Safe and Sound is a highly reputable childcare provider that has worked at our last three newly diagnosed weekends. They have demonstrated exceptional care and attention to the children in their care, earning outstanding feedback. Parents have consistently praised the warm and welcoming atmosphere that Safe and Sound creates, and have noted that their children feel comfortable and happy in their care. The team goes above and beyond to make sure that children’s needs are met and that parents feel confident and reassured that their child is in good hands. Based on their exceptional performance, it is clear that Safe and Sound is a trusted and reliable partner for our event. We can continue to count on them to provide top-notch childcare services that exceed expectations and ensure the safety and wellbeing of all children in attendance.


As places for our newly diagnosed families weekend are limited, we encourage families to register their interest below as soon as possible to be added to our waiting list.

Our team will review each application carefully and ensure that families who are selected for the event will receive an invitation in due course. We understand that this event is important to many families, and we will do our best to accommodate as many as possible.

If we are unable to offer a place for the upcoming event, we will keep families on our waiting list and notify them of any future events or opportunities. We appreciate your understanding.

Families attending must be members of The Haemophilia Society. If you are not a member, please click the link to join – Become A Member.

You can read more about our Newly Diagnosed Families Weekend here.

    Event Registration - Newly Diagnosed Families Weekend

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