Newly Diagnosed Families Weekend – Brentwood
Our Newly Diagnosed Families weekends (NDW) are free events that support parents who have recently found out their child has a bleeding disorder. We bring together experts in bleeding disorders care to share knowledge and experiences so families get the help they need to ensure their child receives the best care.
Our NDW events are open to families with a child/children (aged 0 to 14 years) diagnosed with a bleeding disorder in the past two years.
Throughout the weekend, you will meet a range of people involved in bleeding disorders care, including:
- haematology consultant
- clinical nurse specialist
- play specialist
Our sessions include presentations and demonstrations, giving everyone the chance to ask questions and find out what they need to know. It allows you to find out more about your child’s bleeding disorder. The weekend aims to give a brief overview of the bleeding disorders that affect the families attending each event.
While you are attending the sessions, there is specialised bespoke childcare. The diversity and differing experiences of the team mean that they are able to cater and care for all age ranges, from two-week-old babies to teenagers. They work with you to guarantee that those charged to their care have the best possible time and are entertained at the most key parts of this event. All childcare staff hold an enhanced DBS certificate, ensuring the professionalism and character of the people who will be looking after your children.
Please note our Newly Diagnosed Weekends are very popular, and there is often a waiting list. If you would like to be on our waiting list, please fill in the form below. This does not guarantee you a space at this event.
Families attending must be members of The Haemophilia Society, which is free to join. If you are not a member, please click the link to join – Become A Member.
You can read more about our Newly Diagnosed Weekends here.