Simon Hamilton, Chair of Haemophilia Northern Ireland
The Haemophilia Society is deeply saddened by the sudden death of Simon Hamilton, Chair of…Read more
Policy Posts
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THS representatives at 2023 party political conferences
We are at the major party political conferences this year to highlight the treatment and…Read more
Clive Smith: I went to Conservative Party Conference to raise the issues facing our members
The Conservative Party met in Birmingham last week for their annual party conference. I went…Read more
Conservative Party Conference 2021
Our Policy and Public Affairs Manager Jeff Courtney was at the Conservative party conference this…Read more
Health Policy at Labour Party Conference
The Labour Party met down in sunny Brighton this week for their annual conference. There…Read more
MOT due dates extended by six months
MOT due dates for cars, motorcycles and light vans are to be extended by six…Read more
DWP suspends benefit reviews and reassessments
Reviews and reassessments for disability benefits are being suspended for the next three months as…Read more
Letter from the APPG to Amber Rudd
Letter signed by members of the Haemophilia and Contaminated Blood APPG to Amber Rudd, Secretary…Read more
APPG holds evidence sessions in Parliament
Over the course of the last six weeks, the All-Party Parliamentary Group (APPG) on Haemophilia…Read more
Initial Diagnosis Report Launched
Early this year The Haemophilia Society began a project to understand the experiences of families…Read more
Announcement from NHSE on Inhibitor Treatment
NHSE has announced that Emicizumab (marketed as Hemlibra) can be provided to Haemophilia A patients with…Read more
DWP Reviewing PIP Applications from People with Bleeding Disorders
In October 2017, the Department for Work and Pensions set up a working group with…Read more