Simon Hamilton, Chair of Haemophilia Northern Ireland
The Haemophilia Society is deeply saddened by the sudden death of Simon Hamilton, Chair of…Read more
Written by Jeff Courtney
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First licensed gene therapy for haemophilia B not recommended for use in the NHS
The first attempt to get a gene therapy for haemophilia B commissioned in the UK…Read more
Gene Therapy for Haemophilia B to be licensed next year
A gene therapy for haemophilia B has moved a step closer to being licensed for…Read more
Putting Access to Physiotherapy on the Agenda in Parliament
The Haemophilia Society this week brought together key people from the world of haemophilia care…Read more
First Gene Therapy Treatment for Haemophilia to be Licensed
Last week the European Medicines Agency recommended that a license be granted to Roctavian a gene therapy…Read more
European Conference Discusses Better Support For Women
The weekend of 21 and 22 May 2022 saw the second ever European conference dedicated to…Read more
Cell and Gene Collective calls for more political leadership to ensure patient access to gene therapies
The Haemophilia Society is part of a group of rare disease charities called the Cell…Read more
Government needs to publish study on Compensation Framework for people affected by contaminated blood products
The Haemophilia Society, MPs and other campaigners have written to the Government demanding they publish…Read more
Advances in inhibitor knowledge and treatment
Inhibitors are a complication of haemophilia treatment, in which the patient’s body begins to produce…Read more
New Health and Care Bill will reorganise the NHS
The Health and Care Bill, which is currently being debated in parliament, has the potential…Read more
NHS Innovative Medicines Fund provides route to new treatments for bleeding disorders
Last year the Government announced plans for a new fund to allow people with rare diseases in…Read more
Conservative Party Conference 2021
Our Policy and Public Affairs Manager Jeff Courtney was at the Conservative party conference this…Read more