Written by Jeff Courtney

European Conference Discusses Better Support For Women

The weekend of 21 and 22 May 2022 saw the second ever European conference dedicated to…
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Cell and Gene Collective calls for more political leadership to ensure patient access to gene therapies

The Haemophilia Society is part of a group of rare disease charities called the Cell…
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Government needs to publish study on Compensation Framework for people affected by contaminated blood products

The Haemophilia Society, MPs and other campaigners have written to the Government demanding they publish…
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Advances in inhibitor knowledge and treatment

Inhibitors are a complication of haemophilia treatment, in which the patient’s body begins to produce…
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New Health and Care Bill will reorganise the NHS

The Health and Care Bill, which is currently being debated in parliament, has the potential…
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NHS Innovative Medicines Fund provides route to new treatments for bleeding disorders

Last year the Government announced plans for a new fund to allow people with rare diseases in…
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Conservative Party Conference 2021

Our Policy and Public Affairs Manager Jeff Courtney was at the Conservative party conference this…
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Health Policy at Labour Party Conference

The Labour Party met down in sunny Brighton this week for their annual conference. There…
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