Written by Jeff Courtney

Support, swimming and strategy in Malta 

We’ve just spent a productive few days in Malta in support of its bleeding disorders…
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Simon Hamilton, Chair of Haemophilia Northern Ireland

The Haemophilia Society is deeply saddened by the sudden death of Simon Hamilton, Chair of…
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First licensed gene therapy for haemophilia B not recommended for use in the NHS

The first attempt to get a gene therapy for haemophilia B commissioned in the UK…
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Gene Therapy for Haemophilia B to be licensed next year

A gene therapy for haemophilia B has moved a step closer to being licensed for…
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Putting Access to Physiotherapy on the Agenda in Parliament

The Haemophilia Society this week brought together key people from the world of haemophilia care…
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First Gene Therapy Treatment for Haemophilia to be Licensed

Last week the European Medicines Agency recommended that a license be granted to Roctavian a gene therapy…
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European Conference Discusses Better Support For Women

The weekend of 21 and 22 May 2022 saw the second ever European conference dedicated to…
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Cell and Gene Collective calls for more political leadership to ensure patient access to gene therapies

The Haemophilia Society is part of a group of rare disease charities called the Cell…
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Government needs to publish study on Compensation Framework for people affected by contaminated blood products

The Haemophilia Society, MPs and other campaigners have written to the Government demanding they publish…
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Advances in inhibitor knowledge and treatment

Inhibitors are a complication of haemophilia treatment, in which the patient’s body begins to produce…
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New Health and Care Bill will reorganise the NHS

The Health and Care Bill, which is currently being debated in parliament, has the potential…
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NHS Innovative Medicines Fund provides route to new treatments for bleeding disorders

Last year the Government announced plans for a new fund to allow people with rare diseases in…
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