What We Do
The Haemophilia Society is the only UK-wide charity and free membership organisation for everyone affected by a bleeding disorder. It aims to empower people affected by a bleeding disorder to live life to the fullest.
We want to ensure that everyone affected by a bleeding disorder:
- Has equality of opportunity
- Has the opportunity to connect with others in the community
- Has the knowledge to feel empowered
We do this by:
- Raising awareness about bleeding disorders
- Providing information and support throughout our members lives
- Influencing and advocating on health and social care policy and access to treatment
The Society offers support through local groups across the UK, free membership events for people at all stages of life, and a vibrant online community, where people affected by bleeding disorders can find friendship, a listening ear, information, and share their views and experiences. Expert, in-depth resources and news updates keep members informed and help equip them with knowledge and confidence.
Together with its members, the Society has also campaigned on behalf of people affected by bleeding disorders for over 70 years, continuously lobbying Government, the NHS and clinicians for the best possible care, safe and effective treatment, and equitable access for all.
There are over 4,500 members of The Haemophilia Society, including people and families living with bleeding disorders, as well as healthcare professionals. The charity’s supporters help fundraise the costs that are vitally needed to be able to offer membership – and services such as events and printed publications – entirely free to all members.
More than 36,000 men, women and children in the UK have a diagnosed bleeding disorder, and this number rises every year.