VWD Guidelines development – have your say

Written by Aaron Dennis, July 17, 2018

Have you got von Willebrand Disease (VWD), or do you care for someone with VWD? Are you a health professional working with people with VWD? If you answered yes to any of these questions, the World Federation of Hemophilia invites you to complete their stakeholder survey and have your say on the diagnosis and management of VWD.

People living with VWD possess a unique expertise of the disease. Those that care for people with VWD bring another expert perspective, while hematologists and other healthcare professionals working with people with VWD each have important insights to share. The guideline development panels will be better able to make recommendations for diagnosis and management if they can learn from the experiences and expertise of as many stakeholders as possible.

The survey is two pages in length and will take approximately 10-15 minutes to complete.

In order to gather input from around the world, the survey is available in three languages:

The deadline for completion is July 29, 2018.

Thank you in advance for your support.