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Women’s awareness

Women’s Awareness

When it comes to haemophilia, patients are predominantly male with women being carriers of the disorder. However, there are women diagnosed with mild haemophilia and there are also symptomatic carriers. A vast proportion of our membership are people with von Willebrands disease, many of them women. Talking Red is our flagship programme raising much-needed awareness of bleeding disorders among the female community.

Talking Red

The Haemophilia Society campaign to get women talking about bleeding disorders

A bleeding disorder is a serious lifelong condition often requiring daily treatment and specialist care. There is a lot of misunderstanding about bleeding disorders and many people don’t know that women are affected too. In fact, tens of thousands of women across the UK are living with the symptoms of a bleeding disorder without even knowing it.

The Talking Red campaign was launched to make women more aware of the symptoms of a bleeding disorder – heavy periods, bruising easily and prolonged bleeding after a procedure or childbirth – and to promote better understanding of what it means to live with such a condition.

Bleeding disorders can’t be cured but there is effective treatment available, so our message is get Talking Red to help the thousands of women who are suffering in silence. We need your ongoing support to reach the tens of thousands of women unaware they have a bleeding disorder. We are now in the fifth year of Talking Red, and thanks to the fantastic support of women across the country we have spread the message right across the UK, but we have lots more to do. This year Talking Red is going to be bigger and better so please join us.

Get involved

Women with Bleeding Disorders & Carriers’ Conference | Belfast (Sat 22 June 2019) and Birmingham (Sat 29 June 2019)

We are really excited to have two Talking Red conferences this year and are pleased to have been able to partner with The Irish Haemophilia Society for our event in Belfast. Both conferences will cover similar content and we hope that people will attend the location that is most convenient to them.

If you are a woman with a bleeding disorder, a carrier or their partner then this conference is for you! There’s a line-up of excellent speakers on topics including:

  • Relationships, sex and communication
  • Emotional well being
  • Physical wellbeing
  • Menstruation
  • Treatment options
  • Pregnancy, childbirth and parenthood

We hope it will be a great networking opportunity for our community of women with bleeding disorders (and their partners) and mothers of young girls with bleeding disorders. If you would like to attend, please sign up via the event page.

It’s not too late to get involved in Talking Red 2019 and help us raise awareness of bleeding disorders in women. You can even download some of the Talking Red materials to use at your event.

We’d love you to host your own event with your friends, either #PaintitRED, #BakeitRED or another #TalkingRED inspired event to help spread the message about bleeding disorders in women. We love seeing unique ideas so get creative and send us a picture using one of our hashtags! You can request your campaign pack here.

If you use social media please spread the word to all your friends and family by using #TalkingRed, you can also download our selfie message and Facebook banner. Or you could help by putting up posters and sharing our Talking Red leaflet with friends, colleagues and haemophilia centres, local shops etc. You will find all the materials you need on the  downloads page or feel free to get in touch. You can email services@haemophilia.org.uk to let us know how you’re getting on.

Find out more about the campaign by clicking on the pages below: