The Macfarlane Trust (MFT)
The Macfarlane Trust (MFT) was set up in 1988 by the British Government to support people with haemophilia who were infected with HIV as a result of contaminated NHS blood products, and their spouses, parents, children and dependants. During the late 1970s and early 1980s more than 1,200 people with haemophilia were infected with HIV through their clotting factor treatment. A large proportion of people were also infected with hepatitis C.
MFT is funded by the Department of Health. The majority of funding is spent on discretionary regular payments to those who were infected (“primary beneficiaries”) and to bereaved spouses/partners. There is also a small annual grants budget, and MFT is also able to refer beneficiaries for specialist benefits and money management / debt advice. You can contact the MFT here.
Until April 2012 The Haemophilia Society had the right to appoint 3 people to the Board of Trustees at The Macfarlane Trust. There are currently 2 people The Haemophilia Society appointed as trustees on the Board of MFT. The Haemophilia Society has no jurisdiction over these trustees, and they do not act as representatives of The Haemophilia Society or our members.
The Skipton Fund
The Skipton Fund is a UK-wide ex-gratia payment scheme to make payments to certain people who were infected with hepatitis C through treatment with NHS blood or blood products prior to September 1991 and other persons eligible for payment in accordance with the scheme’s provisions.
The Skipton Fund was established on 25 March 2004 by the Department of Health (England), acting for and on behalf of the Secretary of State for Health, the Scottish Ministers, the National Assembly for Wales and the Department of Health, Social Services and Public Safety (Northern Ireland) (together “the UK health administrations”), to administer the scheme and make payments to relevant claimants on behalf of each of the UK health administrations.
Scottish Ministers have adopted the Skipton Fund as a scheme under section 28 (Infection with hepatitis C as a result of NHS treatment etc) of the Smoking, Health and Social Care (Scotland) Act 2005.
You can contact the Skipton Fund here.
The Caxton Foundation
The Caxton Foundation (Caxton) is a registered charity that was set up in 2011 by the British Government to provide financial and other assistance to individuals who have been infected with the Hepatitis C virus as a consequence of receiving NHS treatment using contaminated blood, blood products or tissue. Caxton is funded solely by the Department of Health but as a charity is run by a board independent of the Department.
Caxton provides support to its beneficiaries, including through grants, winter fuel payments, and financial support whilst people undergo treatment for hepatitis C.
To be eligible for support from the Caxton Foundation, you, or a close relative who has died, must have received a stage 1 payment from the Skipton Fund.
You can contact Caxton here.