I have Haemophilia A (severe) and was not diagnosed until nearly 4 years of age during a 4 month stay in hospital being immobilised in traction due to a bleed in my right knee. As a family we have been Society members for over 40 years and I’m currently its representative on the UKHCDO National Haemophilia Database Data Analysis Group, and helped at the 2018 Glasgow World Conference. Like many of my generation I have been affected by the historic infected blood issues and have joint problems.
I had a diverse 30 year Civil Service career including project and programme management, implementing business and cultural change, finance and governance, extensive staff management responsibilities, management information/statistics, briefing and presenting to senior officials, pan government and industry collaborative working and undertook a 2 year leadership development programme for civil servants with disabilities. I have been continuously involved with swimming as a volunteer since 1985 and hold a HND equivalent coaching qualification, and had the pleasure of teaching/coaching swimmers from non-swimmer to Great Britain level. In addition to my coaching I have undertaken various administrative and mentoring responsibilities, and was County President in 2016.
In recent years the “travel bug” has bit and (primarily) as a solo traveller I’ve been to Australasia, multiple countries in Southeast Asia, India, Maldives, USA, and European destinations either backpacking, organised/activity tour or on a more traditional holiday basis …. there are still a few more on my list to do!