Show your support on Rare Disease Day 2022
Written by Aaron Dennis, February 28, 2022
In the UK there are over 36,000 people with a rare genetic bleeding disorder such as haemophilia, Factor VII deficiency, Glanzmanns or von Willebrands.
Celebrated every year on the last day of February, Rare Disease Day is an opportunity to be part of a global campaign to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients’ lives.
Since 2008, the global rare disease community has come together on Rare Disease Day to share their colours and advocate for change.
The campaign largely targets the general public and also seeks to raise awareness amongst policy makers, public authorities, industry representatives, researchers, health professionals and anyone who has a genuine interest in rare diseases.
Rare Disease Day is for everyone – individuals and families directly affected by rare diseases, caregivers, medical professionals, policy makers, companies, researchers and members of the general public can all get involved to show their support for the global rare disease community.