Robyn’s story

I have type 3 Von Willebrands, I was diagnosed at about 3 years old after having a prolonged bleed from biting my tongue. At first I was misdiagnosed but once the doctors did a clotting test it was evident that I had Von Willebrands. I am very fortunate that my condition is well managed by the compassionate team at the haemophilia centre in St Thomas’ hospital. As a result of bleeds into my joints I have some minor mobility issues, therefore I have to be diligent not to over stress my joints, but I don’t let this hold me back.

Robyn, 16