Offering new families expert support

Written by Aaron Dennis, November 20, 2020

On 31 October 2020 we held our first Newly Diagnosed virtual event. We didn’t want our new families to miss out on this educational and informative event due to the ongoing Covid-19 restrictions.

This event, designed to support parents who have recently found out their child has a bleeding disorder, brings together experts in bleeding disorders care so families get the help they need to ensure their child gets the best possible care.

The presentations included:

  • Overview of bleeding disorders by Dr Kate Khair, Haemnet
  • How can my haemophilia nurse support us? by Julia Spires, Great Ormond Street Hospital
  • Physiotherapy and its benefits by Sarah Jones, Cardiff and Vale University Health Board/ Hcpa
  • Stress management for parents of a child with a bleeding disorder by Martin Sugg, Psychotherapist

If you would like to watch our speaker presentations, please register on the link below. https://col.eventsair.com/nwd/ndw2020/Site/Register

We hope to be able to run our newly diagnosed weekends again in summer 2021

Our NDWs are free to our members and open to families who have a child aged 0–5 years and recently diagnosed with a bleeding disorder. These weekends are very popular and there is often a waiting list.

If you would like to attend you can also let us know that you’re interested by emailing [email protected]