Statement from Kate Burt, CEO, The Haemophilia Society

On 18 December 2020 The Haemophilia Society received a Subject Access Request covering the period 1 January 2020 to 17 December 2020, in accordance with Article 15 of the General Data Protection Regulation from Jason Evans.

In reviewing the information requested, internal conversations came to light which fell significantly short of the professionalism I expect from all staff and trustees at The Haemophilia Society. Some of these conversations contained unacceptable language for which I offer my unreserved apology.

Mr Evans is a dedicated and highly effective campaigner who has suffered terrible loss as a result of the contaminated blood scandal. He deserves better from The Haemophilia Society, which has been supporting people with inherited bleeding disorders for 70 years.

This matter has been taken extremely seriously with the following action already underway:

  • THS has reported the incident to the Charity Commission.
  • Current staff members involved in these communications have been interviewed and future performance will be monitored.
  • Guidelines have been issued to all staff making clear the charity’s expectations concerning internal and external communication with all stakeholders.
  • Mandatory staff and trustee training in communications and codes of conduct will take place in February-March 2021.

Regardless of personal opinions and frustrations around a highly emotive and sensitive public inquiry, The Haemophilia Society recognises that what has taken place is both unacceptable and unprofessional and unreservedly apologises for any hurt that has been caused.