Healthcare Posts

Face-to-face PIP assessments to resume in England

With lockdown restrictions in England easing, face-to-face PIP assessments will slowly be returning – with…
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The Haemophilia Society and Healthcare at Home –working together to improve the service to patients with bleeding disorders

We have been working with Healthcare At Home recently to improve the service to patients…
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Takeda UK and The Haemophilia Society launch national survey results uncovering new insights into mental health impact for people living with bleeding disorders

The Bleeding Disorders Patient Experience Survey has been initiated and funded by Takeda and developed…
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Healthcare at Home – product recall statement

Healthcare at Home have been advised by the Medicines and Healthcare products Regulatory Agency (MHRA)…
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Take part in the Coping with COVID-19 Community Survey

This survey aims to examine the impact of the current COVID-19 pandemic on the mental…
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The Haemophilia Society responds to NICE Consultations

Starting in 2020, NICE has been running a series of consultations looking at their processes for health…
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Update to Hemlibra (emicizumab) Convenience Kits

Following approval from the European Medicines Agency (EMA) last August, Roche-Chugai will be introducing updated…
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Share your thoughts on the services for people with bleeding disorders

Do you have or care for someone with a bleeding disorder? How can we improve…
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Show your support on Rare Disease Day 2021

In the UK there are over 36,000 people with a rare genetic bleeding disorder such…
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Fitusiran update following EAHAD 2021 Congress

During the Congress of the European Association for Haemophilia and Allied Disorders (EAHAD) in early February 2021, Sanofi…
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EHC publishes update on the nasal desmopressin spray recall

In 2020 manufacturer Ferring issued a voluntary, worldwide recall of its desmopressin-containing nasal sprays including Octim®,…
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Take part in survey about your experiences of the COVID-19 vaccine

The haemophilia team at Bristol have designed a short questionnaire (with input from some local…
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