Written by Jess Milton

Offering new families expert support

On 31 October 2020 we held our first Newly Diagnosed virtual event. We didn’t want…
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Bleeding Matters live! Virtual consultations – making the most of new reality

At our recent webinar we heard from Gary Benson, centre director and Helen Hanson, haemophilia…
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First virtual member conference a great success!

On Saturday 14 November we held our first virtual member conference and AGM, where we…
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APPG on Haemophilia and Contaminated Blood launch final report

The APPG on Haemophilia and Contaminated Blood are a group of MPs who campaign for…
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Home deliveries from Healthcare at Home – latest update

We have been made aware that some of our members have been experiencing issues with…
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Announcing Kate Burt as our new Chief Executive

The Haemophilia Society is delighted to today, Monday 28 September, announce the appointment of a…
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Announcement on the Clinical Commissioning Policy: Vonicog alfa for the treatment and prevention of bleeding in adults with von Willebrand disease

We are delighted to announce that the NHS England Specialised Commissioning Directorate have approved Veyvondi…
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Take part in exciting new research in partnership with Newcastle University

Are you a caregiver for a young person with haemophilia? Would you like to take…
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Haemophilia centre will return to its original base at the Royal Victoria Infirmary

We recently wrote to The Newcastle upon Tyne Hospitals NHS Foundation Trust on behalf of…
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In memory of Jane Tibbutt

Jane Tibbutt, who died, aged 80, in May 2020, lived with a bleeding disorder and,…
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Home delivery – tell us about it

If you get your medication through home delivery, we would like to hear from you….
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New Framework for products for Haemophilia A

A new framework for buying medicines to manage Haemophilia A came into force across the…
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