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The Haemophilia Society’s role at the Infected Blood Inquiry

The Haemophilia Society has a unique role in the Infected Blood Inquiry.  

Representing our members

As the only UK-wide charity for people affected by a genetic bleeding disorder, The Society is proud to represent our members at the inquiry.

Not all our members feel able to speak publicly about how the contaminated blood scandal has affected their lives and, for those who want it, we are pleased to speak on their behalf. 

We believe it is our role to make sure the evidence given to the inquiry is communicated to our members and the wider world, and to ensure that the voice and interests of those with a bleeding disorder are heard.

Full co-operation with inquiry investigations

As part of the inquiry’s investigations, The Society’s role during the contaminated blood scandal will be scrutinised. We welcome the chance to help the inquiry get the answers it needs. To this end, we have voluntarily waived legal privilege, meaning the inquiry has absolutely all the The Society’s evidence.

Public apology for The Society’s advice during the scandal

It is a matter of public record that during the contaminated blood scandal The Society issued statements reassuring people with bleeding disorders that the new factor treatments were safe and to continue using them. 

The advice we gave our members was based on guidance from Haemophilia Centre Directors (now known as the UKHCDO) and from the Government. We accept that our actions and statements at the time, while well intentioned and based on expert advice, have subsequently been shown to be damaging to the community and false. For this, we have apologised unreservedly. 

We know that some of our members are angry and disappointed by actions taken by The Society in the past. Some felt unsupported and believe The Society should have done more to help them. We hope that by opening up our archives to the inquiry and fully engaging with its investigation, criticism can be dealt with openly and honestly.  

The Haemophilia Society has been campaigning for a public inquiry since 1988. We hope this inquiry will finally deliver closure, justice and recognition of the suffering it has caused.