CALL US NOW 0207 939 0780
PLEASE DONATE

Uncategorised

VWD Guidelines development – have your say

Have you got von Willebrand Disease (VWD), or do you care for someone with VWD? Are you a health professional working with people with VWD? If you answered yes to any of these questions, the World Federation of Hemophilia invites you to complete their stakeholder survey and have your say

Read More

Belfast Roadshow cancelled due to the weather

Due to the adverse weather conditions we have decided to cancel the Public Inquiry Roadshow in Belfast on Friday. We also cancelled the Bristol meeting earlier this week. We will look to rearrange both meetings soon. Apologies for the inconvenience. For further information about the statutory public inquiry into contaminated

Read More

Support the Campaign to get the Government to #getagriponPIP

Please support our e-action to raise awareness of the significant problems with Personal Independence Payment (PIP) which is replacing DLA for adults. Many people with bleeding disorders rely on assistance to cover the additional costs of living with their condition. This has traditionally been provided through the Disability Living Allowance

Read More

Have your say!

Hive Health are looking to gather a group of people to take part in a session with the objective of supporting a pharmaceutical company gain a deeper understanding of what it is like for an individual to live with moderate or severe haemophilia A. The session itself will be in

Read More