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Bridging health and social care on #RareDiseaseDay

In the UK there are over 30,000 people with a rare genetic bleeding disorder such as haemophilia, Factor VII deficiency, Glanzmann’s or von Willbrand’s. Medical expertise and knowledge on rare diseases generally is scarce and scattered across borders. People often wait years for a diagnosis and struggle to access the

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Government announces Inquiry into Contaminated Blood Scandal

The Haemophilia Society welcomes the Government’s announcement of a public inquiry into the contaminated blood scandal. Our members and campaigners will be pleased and relieved that after decades of campaigning there will finally be an inquiry into how over 5,000 people with bleeding disorders were infected by contaminated blood products.

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APPG on Haemophilia and Contaminated Blood – Latest Meeting

The APPG on Haemophilia and Contaminated Blood met on the 29th March. The Agenda for the Meeting was: Introductions and Apologies New Contaminated Blood Support consultation Aspects of the new proposals The new scheme administrator Plans for engagement Proposed meeting with Lord O’Shaughnessy Update on actions from the last meeting

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