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Public Inquiry Update

Eleven months after the Government announcement of the Statutory Public Inquiry into the Contaminated Blood Scandal, The Haemophilia Society has, today, reaffirmed its demand that, at the minimum, the Terms of Reference and a timetable for the inquiry must be published before the first anniversary of the announcement on July

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We need your help to find out what matters most

No one understands bleeding disorders better than those who experience it or care for those that do every day. The Stop the Bleeding survey that took place in 2017, was developed to better understand what matters to parents, carers and clinicians in the field of bleeding disorders. Using your responses,

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Take part in our inhibitor survey

We’re conducting a survey among people aged 16+ with a bleeding disorder who have an inhibitor and their family members. An inhibitor is a type of antibody that prevents factor replacement treatment from working. When an inhibitor develops, it binds to factor concentrates such as factor VIII or factor IX,

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