It was a chance conversation between Mike King and Martin Lawrence chairman of Redway Running Club, a group of which Mike is a member, that led to The Haemophilia Society being nominated as the club’s Charity of the Year 2016-17. During one of their winter runs together, Mike informed Martin
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GamesAid – Please can you help?
We are so excited! We have been nominated for a donation to our work for this years GamesAid charity vote. Games Aid is the charity of the video gaming community and each year has a members chose amazing charities to support, via an online vote. Each year they chose between 5
Have your say!
Hive Health are looking to gather a group of people to take part in a session with the objective of supporting a pharmaceutical company gain a deeper understanding of what it is like for an individual to live with moderate or severe haemophilia A. The session itself will be in
Blog update from our Summer Camp 2017
As part of our amazing Summer Camp, our young intrepid campers are trying to blog and send photos to let us about what they are doing each day. The week begins The week begins with groups 1,2,3,4, 5 by the end of day two we will have superhero group titles
Statement on steps towards establishment of Contaminated Blood Inquiry
Campaigners and representatives including the Haemophilia Society took part in a conference call last week to try to find a way forward to create an inquiry into contaminated blood and blood products that would have the confidence of the affected community. This followed the proposal by Government of talks between
Potential Way forward for Contaminated Blood Inquiry agreed
Representatives and campaigners for people affected by contaminated blood and blood products took part in a phone call this morning to discuss a way forward for the planned inquiry. The call was chaired by Bishop James Jones (who led the Hillsborough Inquiry) and facilitated by the APPG on Haemophilia and
Advice to members regarding DH consultation on Contaminated Blood Inquiry
The Government launched a short consultation last week on the nature and remit of the Contaminated Blood inquiry. Members registered with one of the Contaminated Blood support schemes will have received a letter from the Department of Health (DH) in the last couple days. The Haemophilia Society and campaigners reject
DH involvement in Contaminated Blood Inquiry rejected
The Haemophilia Society was invited to a meeting hosted by the Department of Health (DH) to discuss the remit and powers of the inquiry in to contaminated blood and blood products but has refused to attend. In reply to the invite Liz Carroll, Chief Executive of the Haemophilia Society, wrote
Issue identified in BPL plasma products production
The Department of Health (DH) published a statement this morning regarding an issue identified during a routine inspection of Bio Products Laboratory (BPL) and their production of plasma derived blood products. The statement says that there was a problem with the computer software which controls the process of selecting, testing and
The Haemophilia Society supports members in opposing DH involvement in creation of Contaminated Blood Inquiry
Campaigners from all groups representing people affected by the contaminated blood scandal have written to the Government rejecting their proposed process of consulting on the creation of the public inquiry. The Haemophilia Society had intended to raise these issues at the meeting but has heard the message from campaigners, many