CALL US NOW 020 7939 0780

BLOG

Public Inquiry Update

Eleven months after the Government announcement of the Statutory Public Inquiry into the Contaminated Blood Scandal, The Haemophilia Society has, today, reaffirmed its demand that, at the minimum, the Terms of Reference and a timetable for the inquiry must be published before the first anniversary of the announcement on July

Read More

We need your help to find out what matters most

No one understands bleeding disorders better than those who experience it or care for those that do every day. The Stop the Bleeding survey that took place in 2017, was developed to better understand what matters to parents, carers and clinicians in the field of bleeding disorders. Using your responses,

Read More

Take part in our inhibitor survey

We’re conducting a survey among people aged 16+ with a bleeding disorder who have an inhibitor and their family members. An inhibitor is a type of antibody that prevents factor replacement treatment from working. When an inhibitor develops, it binds to factor concentrates such as factor VIII or factor IX,

Read More

World Haemophilia Day - April 17

World Haemophilia Day 2018

Welcome to World Haemophilia Day Today is World Haemophilia Day. It is a day where we hold events to promote understanding and awareness of bleeding disorders. We do this while raising much needed funds for The Haemophilia Society to support our campaigning, events and services. This year’s theme This year,

Read More

APPG Meeting on the 31st January 2018

On the 31st January 2018 the APPG met to discuss the Contaminated Blood Inquiry and support schemes for those affected by the Scandal. You can read the minutes of the January 2018 APPG meeting here

Read More

Research into the lives of Haemophilia Siblings

Calling all brothers and sisters of people with severe haemophilia A! One of our members recently contacted us about a very interesting study exploring the lives of healthy siblings of adults living with severe haemophilia A. We thought you might be interested in taking part. This is what Cathy the

Read More