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Book now for our member conference and AGM

All members are invited to join us for our two-day mini congress including AGM and gala dinner on Saturday & Sunday 17/18 November 2018 in Birmingham. Enjoy sessions on a wide range of relevant topics, meet others with bleeding disorders and find out the results of trustee elections for 2018. A

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Come and Meet the Team – Society Meeting 23 September

The Society is planning to hold a meeting in central London on Sunday 23 September, the day before the preliminary hearings of the Infected Blood Inquiry.  The purpose of the meeting is to give all Society members a chance to meet The Society’s Inquiry Team and Legal Advisors, hear about

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Obtaining Medical Records – Update

Introduction Many members have asked us what they need to do if they want to be involved in the contaminated blood and blood products inquiry and what to do with any evidence they may hold, such as records. We have put together below some advice on what to do with

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VWD Guidelines development – have your say

Have you got von Willebrand Disease (VWD), or do you care for someone with VWD? Are you a health professional working with people with VWD? If you answered yes to any of these questions, the World Federation of Hemophilia invites you to complete their stakeholder survey and have your say

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Announcement from NHSE on Inhibitor Treatment

NHSE has announced that Emicizumab (marketed as Hemlibra) can be provided to Haemophilia A patients with current inhibitors under the Framework Agreement for the supply of products for the treatment of bleeding disorders as an in year service development. From 1st July it will be available for routine prophylaxis to Haemophilia

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