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Family weekend at Barretstown camp up for grabs

Do you fancy a family weekend at Barretstown camp in County Kildare, Ireland? Barretstown is a specially-designed camp that provides Therapeutic Recreation programmes for children with serious illnesses, and their families. There are limited spaces left in the following Spring family camps: Spring 5 (1-3 March) Spring 7 (22-24 March)

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Initial Diagnosis Report Launched

Early this year The Haemophilia Society began a project to understand the experiences of families when their child is initially diagnosed with a bleeding disorder. Drawing on some of the stories shared through our #bruisednotabused campaign we reached out to our community to ask them to share their experiences. We

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Monthly updates launched

So much happens here at The Society, and we want to share all of these great things with you more regularly. That’s why have decided to produce a monthly update so that we can keep you in touch with all our news, activities and events. You can read our update

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Society Chief Executive writes in the Times

After more than three decades we have, at last, a full public inquiry into the infected blood scandal which has led to the deaths of more than 2,500 people and caused incalculable suffering to thousands more. It is not just the numbers of people involved that are shocking, it is

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Public Inquiry into infected blood opens

After so many years of campaigning across our community, today sees the opening of the Public Inquiry into infected blood. At this time we think of those who are not here with us today to witness this, we think of those who are living with the complex challenges these infections

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Book now for our member conference and AGM

All members are invited to join us for our two-day mini congress including AGM and gala dinner on Saturday & Sunday 17/18 November 2018 in Birmingham. Enjoy sessions on a wide range of relevant topics, meet others with bleeding disorders and find out the results of trustee elections for 2018. A

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Come and Meet the Team – Society Meeting 23 September

The Society is planning to hold a meeting in central London on Sunday 23 September, the day before the preliminary hearings of the Infected Blood Inquiry.  The purpose of the meeting is to give all Society members a chance to meet The Society’s Inquiry Team and Legal Advisors, hear about

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