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Could you help with a study about your experiences of haemophilia A?

We are working with a market research agency specialising in healthcare and medical/pharmaceutical market research. They are currently working on a study for a pharmaceutical company who develop treatments for haemophilia A. We are helping them to recruit participants for this research and would like to ask for your support.

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We need you! #TalkingRed – Another Bleeding Survey

There are more than 15,000 women and girls with a diagnosed bleeding disorder in the UK, but we believe that many thousands more are suffering in silence, unaware of their condition. Some of the common symptoms of a bleeding disorder in women include: · heavy periods· bruising easily· prolonged bleeding

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Call for feedback from patients with von Willebrand Disease

NHS England is considering evidence which could lead to the commissioning of a new treatment for adults with Von Willebrand Disease. NHS England believes it has seen enough research from NICE (the National Institute for Health and Care Excellence) to consider making vonicog alpha routinely available and is now looking

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The Haemophilia Society welcomes NHSE announcement on Hemlibra

The Haemophilia Society welcomes NHS England’s announcement today that they will now fund a new treatment for patients with severe Haemophilia A called Hemlibra (emicizumab). Prior to this, Hemlibra was only available to patients with inhibitors, but the new funding announced today means that more people will have access to

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