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WFH World Congress in Malaysia cancelled

The World Federation of Hemophilia has called off its World Congress in Malaysia as a result of the coronavirus pandemic. It has also been announced that the European Haemophilia Consortium has cancelled all of its events until the end of June. The WFH World Congress had been due to take

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DWP suspends benefit reviews and reassessments

Reviews and reassessments for disability benefits are being suspended for the next three months as a result of the coronavirus outbreak, the Department for Work and Pensions has announced. This temporary measure has come into immediate effect and is part of the DWP’s efforts to focus on providing access to

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Updated coronavirus information

Last updated: Tuesday, 24 March 2020 The coronavirus outbreak in the UK Many of you are understandably concerned about the spread of coronavirus. There is no evidence that people with a bleeding disorder are any more likely to catch the virus than the general population but it is important to

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Update on face-to-face health assessments for benefits

Please see the following statement from the Department for Work and Pensions As many of you will already be aware, face-to-face assessments have been suspended due to Covid-19. Please find the link to the government announcement here: www.gov.uk/government/news/face-to-face-health-assessments-for-benefits-suspended-amid-coronavirus-outbreak Please be assured that we are working at pace with our Assessment

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Hemlibra availability with Corona Virus

Following concerns from our community, Roche have issued the following statement about supply and availability of Hemlibra: We understand the interest in Hemlibra▼(emicizumab) for people with haemophilia A and are committed to ensuring adequate supply amid the queries around how the coronavirus might impact availability of Hemlibra. To date, Hemlibra has

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Coronavirus outbreak in the UK

Many of you are understandably concerned about the spread of coronavirus. There is no evidence that people with a bleeding disorder are any more likely to catch the virus than the general population but it is important to continue to follow the latest advice on minimising the chances of catching

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