Today sees the publication of the Overview Report of the Inherited and Acquired Haemophilia and other Bleeding Disorder Peer Review Programme. The aim of the programme was to examine the care provided in haemophilia centres across the UK and measure them against the Quality Standards developed by the UK Haemophilia
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Update from Board of Trustees Chair, Clive Smith
29 May 2020 – Here is an update from our Chair, Clive Smith. This week Clive talks about our new rare diseases factsheets now available to download from our website, he gives an overview of recent board meetings and shares details about a range of virtual webinars and conferences being
Update from Board of Trustees Chair, Clive Smith
22 May 2020 – Here is an update from our Chair, Clive Smith. This week Clive talks about plans for our 70th Birthday and how you can get involved with our 7.0 Challenge, how we can come together as a community virtually and keeping in touch with your centre. If there’s
Update from Board of Trustees Chair, Clive Smith
15 May 2020 – Here is an update from our Chair, Clive Smith. This week Clive talks about plans for our 70th Birthday and 7.0 Challenge, Knitting for Uganda and ‘The Haemophilia Society matters to us because…’ project. If there’s anything you particularly want to know more about, or something we
Sponsored Knit for Uganda
Four years ago Dr Kate Khair went to visit a family in a remote rural part of Uganda. They had a daughter and four sons with a severe haemophilia and their mum was pregnant with another child. They lived six hours drive from the next big town in a ‘village’
HBDCA launch new website
The Haemophilia & Bleeding Disorder Counselling Association (HBDCA) have recently launched their new website and are there for any support they can give to the community, especially during these challenging times of COVID19. www.hbdca.org.uk
Update from Board of Trustees Chair, Clive Smith
1 May 2020 – Here is an update from our Chair, Clive Smith. This week Clive talks about our CEO’s recent departure, our new rare disease booklet, the amazing World Haemophilia Day activities that took place and also he talks about our plans for our 70th Birthday. If there’s anything
Quality Review Service publish peer reviews of the UK’s haemophilia centres
For over a year now, volunteers comprising of patients, parents/carers, HCPs and other advocates from the bleeding disorder community have been working with the Quality Review Service to run peer reviews of the UK’s haemophilia centres. The reviews have been published today and can be found here: https://qualityreviewservicewm.nhs.uk/reviews/ Commenting on
The 2.6 Challenge
The 2.6 Challenge is a nationwide campaign that has been created to help charities across the UK. It’s taking place on 26 April which would have been the 40th London Marathon. On the day of the marathon The Haemophilia Society expected to raise vital funds for our important work but due
Statement on the resignation of Liz Carroll, CEO
The Haemophilia Society’s CEO Liz Carroll has resigned from her position with immediate effect. We know you will be sorry to hear this news. Many of you knew Liz and appreciated the compassionate approach she brought to her role as chief executive over the last six years. On leaving, Liz