I know it’s a worrying time for everyone, but we also know our community are incredibly supportive and know what it’s like to be stuck at home. I want to reassure you that we are still here for you, and continue to work on your behalf to answer your questions
BLOG
Updated coronavirus information
Last updated: Tuesday, 24 March 2020 The coronavirus outbreak in the UK Many of you are understandably concerned about the spread of coronavirus. There is no evidence that people with a bleeding disorder are any more likely to catch the virus than the general population but it is important to
Update on face-to-face health assessments for benefits
Please see the following statement from the Department for Work and Pensions As many of you will already be aware, face-to-face assessments have been suspended due to Covid-19. Please find the link to the government announcement here: www.gov.uk/government/news/face-to-face-health-assessments-for-benefits-suspended-amid-coronavirus-outbreak Please be assured that we are working at pace with our Assessment
Hemlibra availability with Corona Virus
Following concerns from our community, Roche have issued the following statement about supply and availability of Hemlibra: We understand the interest in Hemlibra▼(emicizumab) for people with haemophilia A and are committed to ensuring adequate supply amid the queries around how the coronavirus might impact availability of Hemlibra. To date, Hemlibra has
Coronavirus outbreak in the UK
Many of you are understandably concerned about the spread of coronavirus. There is no evidence that people with a bleeding disorder are any more likely to catch the virus than the general population but it is important to continue to follow the latest advice on minimising the chances of catching
NHS England decisions on new treatments for bleeding disorders
The first artificially made treatment for people with severe types of von Willebrand disease (VWD) has been refused funding by NHS England. This means that people with VWD who need factor cover during surgery or for bleeding complications must continue to rely on plasma-based treatment. Last month, NHS England’s Clinical
Update regarding our current approach to coronavirus
We have been following government advice on the Coronavirus (COVID-19) outbreak very closely and have made some difficult decisions considering the current situation. The following events due to take place on Saturday 14 March and Saturday 21 March 2020 have now been postponed to later in the year: Talking Red
Organ donation rules in England are changing
Organ donation in England will move to an “opt out” system from May 2020. This means that all adults in England will be considered to have agreed to be an organ donor when they die unless they have recorded a decision not to donate or are in one of the
Scotland step closer to becoming first country in world to make sanitary products free for all women
Last month we welcomed a new scheme that allows schools and colleges in England to order free period products for students as part of a government scheme to tackle period poverty. Today it has been announced that Scotland is on the path to become the first country in the world
Response from NHSBT regarding Corona Virus and blood safety
We understand that our members may have concerns about blood and blood product safety and the new Corona virus (now named SARS-CoV-2 which causes COVID-19 disease). We contacted the NHS Blood and Transplant service (NHSBT) for up to date information on this matter. They stated: NHSBT is monitoring the coronavirus