1 May 2020 – Here is an update from our Chair, Clive Smith. This week Clive talks about our CEO’s recent departure, our new rare disease booklet, the amazing World Haemophilia Day activities that took place and also he talks about our plans for our 70th Birthday. If there’s anything
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Quality Review Service publish peer reviews of the UK’s haemophilia centres
For over a year now, volunteers comprising of patients, parents/carers, HCPs and other advocates from the bleeding disorder community have been working with the Quality Review Service to run peer reviews of the UK’s haemophilia centres. The reviews have been published today and can be found here: https://qualityreviewservicewm.nhs.uk/reviews/ Commenting on
The 2.6 Challenge
The 2.6 Challenge is a nationwide campaign that has been created to help charities across the UK. It’s taking place on 26 April which would have been the 40th London Marathon. On the day of the marathon The Haemophilia Society expected to raise vital funds for our important work but due
Statement on the resignation of Liz Carroll, CEO
The Haemophilia Society’s CEO Liz Carroll has resigned from her position with immediate effect. We know you will be sorry to hear this news. Many of you knew Liz and appreciated the compassionate approach she brought to her role as chief executive over the last six years. On leaving, Liz
VWD Guidelines public comment period now open
The WFH invites the global VWD community to comment on the VWD guidelines and recommendations. This is being done through an online survey where stakeholders from the community can choose to respond to the questions/recommendations. The comments can be made on all the recommendations or only on some of them.
World Haemophilia Day 2020
It’s World Haemophilia Day today, Friday 17 April and and we would love you to join us in marking this important day. Here’s a round-up of what you can do to show your support! Host a virtual Buddies Who Brunch this weekend and make sure to include our red theme!
AN UPDATE FROM LIZ CARROLL, CHIEF EXECUTIVE
Here is your weekly update from our CEO Liz Carroll. This week Liz talks about some of our online services we are going to pilot, our virtual Buddies Who Brunch (http://ow.ly/zGzm50z159j) activities for World Haemophilia Day and also she talks about text giving. If there’s anything you particularly want us
Anxious and worried right now? You're completely normal!
Most of us are feeling stressed and anxious at the moment, but how do we deal with it? Dr Gráinne O’Brien is a Senior Clinical Psychologist for the Scottish Haemophilia Psychological Support Service. Here, she gives us her advice on how to stay healthy mentally at a time of great
Update from the European Haemophilia Consortium
Following a meeting hosted by the European Haemophilia Consortium it has been confirmed that there is not believed to be any increased risk of infection with Covid-19 for people who have had Hepatitis C, whatever their previous treatment regime, however following government advice is still important. Information from countries with
MOT due dates extended by six months
MOT due dates for cars, motorcycles and light vans are to be extended by six months. The Department of Transport has announced that the extension will come into effect from 30 March 2020 and is being done to help prevent the spread of coronavirus. You do not need to do