The APPG on Haemophilia and Contaminated Blood are a group of MPs who campaign for people with bleeding disorders. They decided in 2019 to launch an inquiry into Access to Treatment and Care for people with bleeding disorders across the UK. This was in light of growing evidence that people
APPG on Haemophilia and Contaminated Blood launch final report
Service of Thanksgiving and Remembrance
This year’s Service of Thanksgiving and Remembrance will be streamed live on the St Botolph’s YouTube channel, it will be taking place on Saturday 31 October at 2.30pm. We would like to reassure those attending either in person or virtually that the congregation will not be visible on the YouTube
Home deliveries from Healthcare at Home – latest update
We have been made aware that some of our members have been experiencing issues with their home deliveries from Healthcare at Home Ltd. Healthcare at Home Ltd has issued a statement on their website regarding these issues and how they are working to resolve them. This statement will be updated
Announcing Kate Burt as our new Chief Executive
The Haemophilia Society is delighted to today, Monday 28 September, announce the appointment of a new Chief Executive Officer. Kate Burt will take up her role as of 5 October 2020 and brings a wealth of experience of the charity sector at this incredibly formative time for the bleeding disorders
Announcement on the Clinical Commissioning Policy: Vonicog alfa for the treatment and prevention of bleeding in adults with von Willebrand disease
We are delighted to announce that the NHS England Specialised Commissioning Directorate have approved Veyvondi (Vonicog alfa) for the treatment and prevention of bleeding in adults with von Willebrand disease. Vonicog alfa will be routinely commissioned for treatment of haemorrhage and surgical bleeding, and prevention of surgical bleeding, in adults
Take part in exciting new research in partnership with Newcastle University
Are you a caregiver for a young person with haemophilia? Would you like to take part in an online study for caregivers and receive a £10 amazon voucher for your time? Are you: The primary caregiver of a young person (aged 14-24) who receives prophylaxis for haemophilia? Interested in the
Haemophilia centre will return to its original base at the Royal Victoria Infirmary
We recently wrote to The Newcastle upon Tyne Hospitals NHS Foundation Trust on behalf of our members about the apparent decision to permanently move the haemophilia centre from the Royal Victoria Infirmary. We have now received correspondence from the Trust and are pleased to confirm that the Haemophilia centre will
School and Bleeding Disorders webinar.
Join us on Thursday 13 August at 7pm for our School and Bleeding Disorders webinar. We have three experts joining us for our school education session: a haemophilia nurse, teacher/youth ambassador and parent who will share their experiences with you. This webinar will help you prepare for your child’s return
Newcastle Haemophilia Comprehensive Care Centre
The Haemophilia Society writes urgently to The Newcastle upon Tyne Hospitals NHS Foundation Trust asking for an full explanation of the apparent decision to permanently move the haemophilia centre from the Royal Victoria Infirmary without consultation.
OFFICE UPDATE
Due to ongoing government guidance around working safely during COVID-19 our staff continue to work from home to ensure that everyone is kept safe. We currently have a reduced team working and are still contactable via our usual phone numbers and email addresses. We continue to offer support and