After more than three decades we have, at last, a full public inquiry into the infected blood scandal which has led to the deaths of more than 2,500 people and caused incalculable suffering to thousands more. It is not just the numbers of people involved that are shocking, it is
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Public Inquiry into infected blood opens
After so many years of campaigning across our community, today sees the opening of the Public Inquiry into infected blood. At this time we think of those who are not here with us today to witness this, we think of those who are living with the complex challenges these infections
Book now for our member conference and AGM
All members are invited to join us for our two-day mini congress including AGM and gala dinner on Saturday & Sunday 17/18 November 2018 in Birmingham. Enjoy sessions on a wide range of relevant topics, meet others with bleeding disorders and find out the results of trustee elections for 2018. A
Come and Meet the Team – Society Meeting 23 September
The Society is planning to hold a meeting in central London on Sunday 23 September, the day before the preliminary hearings of the Infected Blood Inquiry. The purpose of the meeting is to give all Society members a chance to meet The Society’s Inquiry Team and Legal Advisors, hear about
Call for Pictures for the Commemoration, 24 September
Plans for the commemoration to be held prior to the start of the preliminary hearings of the Inquiry on the morning of Monday 24 September at Church House are progressing. The event aims to be simple, powerful, and memorable and will include photos, poetry, music, and factual information. To ensure
Society given ‘Core Participant’ status
The Haemophilia Society has been given ‘Core Participant’ status for the Statutory Public inquiry into the Contaminated Blood Scandal. The enables The Society to make application under the Inquiries Act 2005 for the cost of legal representation for both The Society and those who join with The Society and its
Obtaining Medical Records – Update
Introduction Many members have asked us what they need to do if they want to be involved in the contaminated blood and blood products inquiry and what to do with any evidence they may hold, such as records. We have put together below some advice on what to do with
VWD Guidelines development – have your say
Have you got von Willebrand Disease (VWD), or do you care for someone with VWD? Are you a health professional working with people with VWD? If you answered yes to any of these questions, the World Federation of Hemophilia invites you to complete their stakeholder survey and have your say
Announcement from NHSE on Inhibitor Treatment
NHSE has announced that Emicizumab (marketed as Hemlibra) can be provided to Haemophilia A patients with current inhibitors under the Framework Agreement for the supply of products for the treatment of bleeding disorders as an in year service development. From 1st July it will be available for routine prophylaxis to Haemophilia
Joining with The Society and Malcomson Law
Malcomson Law has unrivalled experience in the bleeding disorders litigation area having represented people with bleeding disorders at other public inquiries, compensation tribunal scheme applications and representing the interests of people with bleeding disorders at government level in several countries. The Haemophilia Society has, therefore, appointed Malcomson Law to be