Introduction Many members have asked us what they need to do if they want to be involved in the contaminated blood and blood products inquiry and what to do with any evidence they may hold, such as records. We have put together below some advice on what to do with
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VWD Guidelines development – have your say
Have you got von Willebrand Disease (VWD), or do you care for someone with VWD? Are you a health professional working with people with VWD? If you answered yes to any of these questions, the World Federation of Hemophilia invites you to complete their stakeholder survey and have your say
Announcement from NHSE on Inhibitor Treatment
NHSE has announced that Emicizumab (marketed as Hemlibra) can be provided to Haemophilia A patients with current inhibitors under the Framework Agreement for the supply of products for the treatment of bleeding disorders as an in year service development. From 1st July it will be available for routine prophylaxis to Haemophilia
Joining with The Society and Malcomson Law
Malcomson Law has unrivalled experience in the bleeding disorders litigation area having represented people with bleeding disorders at other public inquiries, compensation tribunal scheme applications and representing the interests of people with bleeding disorders at government level in several countries. The Haemophilia Society has, therefore, appointed Malcomson Law to be
Society to Appoint Malcomson Law for Public Inquiry
The Haemophilia Society has today announced its intention to appoint Malcomson Law, a leading specialist health law firm, as their legal advisors for the forthcoming Statutory Public Inquiry into the Contaminated Blood Scandal. Leading the team from Malcomson Law will be Raymond Bradley, their Managing Partner, who has more than
Welcoming the Announcement on Contaminated Blood Scandal Public Inquiry
The Haemophilia Society has welcomed the announcement of the terms of reference of the Statutory Public Inquiry into the contaminated blood scandal during the 70s and 80s. Chief Executive Liz Carroll said: “The Community has campaigned long and hard for this Public Inquiry to be held. With this announcement of
DWP Reviewing PIP Applications from People with Bleeding Disorders
In October 2017, the Department for Work and Pensions set up a working group with individuals affected by contaminated blood and blood products to hear about their experiences of the application and assessment procedures for disability benefits. The working group highlighted issues with how claimants with haemarthropathy (a severe type
Positive progress at meeting with the Inquiry Team
There is positive progress to report on preparations for the Pubic Inquiry following a meeting between The Society and other groups with Sir Brian Langstaff and the Inquiry Team earlier this week. Sir Brian thanked everyone who had responded to the consultation on the Terms of Reference for The Inquiry
New report explores better outcomes for young people with haemophilia
Haemophilia 180 – Taking control A better future for younger people with haemophilia The Haemophilia Society recently worked with Roche and Chugai to produce a report looking at the issues faced by young people when they begin to take control of their own treatment. The report welcomes the advances in
Public Inquiry Update
Eleven months after the Government announcement of the Statutory Public Inquiry into the Contaminated Blood Scandal, The Haemophilia Society has, today, reaffirmed its demand that, at the minimum, the Terms of Reference and a timetable for the inquiry must be published before the first anniversary of the announcement on July