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Getting information from UKHCDO – an update

The United Kingdom Haemophilia Centre Doctors’ Organisation (UKHCDO) has produced an explanatory document about patient information recorded on the National Haemophilia Database (NHD). It also provides a history of the NHD and its development, provides clarity on the information held and any limitations where appropriate. The explanatory document is now

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Contaminated blood support scheme: PM must act

Prime Minister Theresa May has been urged to intervene to improve the financial support system for people infected and affected by the contaminated blood scandal. The Government had promised to address campaigners’ concerns about inequalities in the Infected Blood Payment Scheme before the Infected Blood Inquiry began its witness hearings

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Response to concerns about Emicuzumab

Recently reports have been shared on social media about deaths relating to a new treatment for haemophilia A, Emicuzumab (Hemlibra). This has been used in the UK for treatment of people with Haemophilia A and inhibitors since the start of last year. Earlier this year its license was extended to cover prophylaxis for people

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The Haemophilia Society’s response to the Government’s announcement on changes to the contaminated blood support schemes

The Government’s announcement that an extra £30m is to be allocated to contaminated blood support schemes is to be welcomed, but it is not yet clear if it measures up to the demands of The Haemophilia Society and other campaign groups.   The Society and 11 other campaigners, plus peers and MPs

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Call for contaminated blood action

The APPG on Haemophilia and Contaminated Blood has written the Prime Minister to ensure that the Government sticks to its commitment to deal with problems with the contaminated blood support schemes before the infected blood inquiry begins. With the inquiry beginning its hearings tomorrow on the 30 April this deadline

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A tribute to our community

Today, on the eve of the Inquiry’s first witness hearings, our thoughts are with all those members of our community who are preparing to relive painful and traumatic periods of their past to ensure that the suffering caused by the contaminated blood scandal is finally heard. We pay tribute to

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Share your views with NHS England

NHS England is considering making available a new treatment, Emicizumab (Hemlibra), as an alternative to prophylaxis for people with severe haemophilia A without inhibitors. They now want your views. You can see the proposed commissioning policy and provide your input here https://www.engage.england.nhs.uk/consultation/severe-congenital-haemophilia-a/ The Haemophilia Society have been closely involved in

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