New guidance from the Medicines and Healthcare products Regulatory Agency (MHRA) advises that all hepatitis C patients should be screened for hepatitis B before starting treatment with new Direct-acting Antivirals (DAAs). If patients are infected with both viruses this does not preclude treatment but this should be monitored and managed.
Direct-acting Antiviral (DAA) treatment for Hepatitis C risks Hepatitis B reactivation
Westminster Justice Summit
The Haemophilia Society attended the Westminster Justice Summit today, hosted by Andy Burnham MP. At the event representatives from a large number of justice campaigns, including campaigners on contaminated blood shared their situations and challenges with the group. In his comments, Andy Burnham said there was a need to rebalance
Developments in Contaminated Blood Support January 2017
In December and January there have been a number of developments in the Government’s implementation of their new Contaminated Blood policy and the process for the creation of a new scheme administrator. The new annual payments to primary beneficiaries have been made, more clarity has been provided to beneficiaries in
Go for GOLD at the Olympic Park: Take part in the UK’s highest freefall abseil!
Looking for a different New Year challenge? Want to get your adrenaline pumping and do something different? Then we have the perfect challenge for you! Join us 3 September 2017 and take part in the UK’s highest freefall abseil from the Orbit tower in the Queen Elizabeth Olympic Park. You can feel
Receive a gift voucher in return for your participation in a short Haemnet research study
Are you 16 years or older? The parent of a child under 16? Living with haemophilia? Switching to a new treatment? Haemnet wants to understand more about how your treatment affects your everyday life. They are offering gift vouchers in return for 20 minutes of your time in person or
The winter edition of the EHC newsletter is out now
The latest newsletter from the European Haemophilia Consortium is now available on their website. For the final issue of their comprehensive care and haemophilia spotlight of the year, they interview Prof Geoffrey Dusheiko, an emeritus professor of medicine at the Royal Free Hospital (London) and the University College London School
Diana Johnson follows up on points raised in the Contaminated Blood debate
Following last week’s debate in the House of Commons on Contaminated Blood support, Diana Johnson has written to the Minister Lord Prior to follow up on the points raised. Her letter touches on seven points in particular. She asks for further detail on the proposals for the new scheme administrators
MPs vote for the Government to bring forward revised proposals for Contaminated Blood support
MPs today voted for the Government to bring forward revised proposals for Contaminated Blood support and approved, without a division, a motion criticising the reformed scheme announced this summer. In a debate in the House of Commons this afternoon on Reform of the support arrangements for people affected by contaminated
Minutes of APPG Meeting on the 18th July
APPG Meeting on the 18th July Following the Government announcement on the 13th July of the new support scheme for people affected by contaminated blood the APPG met to consider the next steps. You can read the minutes of the APPG July 2016 meeting here
APPG Meeting with Jane Ellison and DH Officials
The APPG on Haemophilia and Contaminated Blood met with the Minister Jane Ellison to discuss the proposals in the consultation on support arrangements for people affected by contaminated blood. You can read our summary of the Jane Ellison meeting here