LFB Biopharmaceuticals announced today the UK launch of FibCLOT, its human fibrinogen concentrate. This follows the granting of a UK Marketing Authorisation in April 2016, after a decentralised application to the Regulatory Authorities in Europe, and offers increased therapeutic choices for affected patients. FibCLOT® is indicated for the treatment and perioperative
UK launches FibCLOT®▼ LFB’s human fibrinogen concentrate
Submissions to the Health, Disability and Work Green Paper
The Haemophilia Society produced a submission to the Health, Disability and Work Green Paper consultation which closed last week. We commented on various aspects of the proposals to help disabled people and people with long-term conditions to get into or stay in work. Overall we welcomed the Government’s commitment to
Work, Heath and Disability Consultation – Member Input
The Government’s Work, Heath and Disability Consultation closes at the end of this week. The Haemophilia Society has been working on a response to the series of consultation questions but would like further input from members on issues to raise or specific situations to highlight. Overall, we are pleased that
APPG on Haemophilia and Contaminated Blood 8th February
The APPG on Haemophilia and Contaminated Blood met last week on the 8th February to discuss the Agenda below. Agenda Introductions and Apologies Update on the call for a Hillsborough-style independent panel Passporting to benefits for those affected by the Scandal Developments in the implementation of the new Support Scheme
Direct-acting Antiviral (DAA) treatment for Hepatitis C risks Hepatitis B reactivation
New guidance from the Medicines and Healthcare products Regulatory Agency (MHRA) advises that all hepatitis C patients should be screened for hepatitis B before starting treatment with new Direct-acting Antivirals (DAAs). If patients are infected with both viruses this does not preclude treatment but this should be monitored and managed.
Westminster Justice Summit
The Haemophilia Society attended the Westminster Justice Summit today, hosted by Andy Burnham MP. At the event representatives from a large number of justice campaigns, including campaigners on contaminated blood shared their situations and challenges with the group. In his comments, Andy Burnham said there was a need to rebalance
Developments in Contaminated Blood Support January 2017
In December and January there have been a number of developments in the Government’s implementation of their new Contaminated Blood policy and the process for the creation of a new scheme administrator. The new annual payments to primary beneficiaries have been made, more clarity has been provided to beneficiaries in
Go for GOLD at the Olympic Park: Take part in the UK’s highest freefall abseil!
Looking for a different New Year challenge? Want to get your adrenaline pumping and do something different? Then we have the perfect challenge for you! Join us 3 September 2017 and take part in the UK’s highest freefall abseil from the Orbit tower in the Queen Elizabeth Olympic Park. You can feel
Receive a gift voucher in return for your participation in a short Haemnet research study
Are you 16 years or older? The parent of a child under 16? Living with haemophilia? Switching to a new treatment? Haemnet wants to understand more about how your treatment affects your everyday life. They are offering gift vouchers in return for 20 minutes of your time in person or
The winter edition of the EHC newsletter is out now
The latest newsletter from the European Haemophilia Consortium is now available on their website. For the final issue of their comprehensive care and haemophilia spotlight of the year, they interview Prof Geoffrey Dusheiko, an emeritus professor of medicine at the Royal Free Hospital (London) and the University College London School