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Offering new families expert support

Offering new families expert support

On 31 October 2020 we held our first Newly Diagnosed virtual event. We didn’t want our new families to miss out on this educational and informative event due to the ongoing Covid-19 restrictions. This event, designed to support parents who have recently found out their child has a bleeding disorder,

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First virtual member conference a great success!

On Saturday 14 November we held our first virtual member conference and AGM, where we brought together our members, experts in bleeding disorders, trustees, ambassadors and staff team. Initial feedback has shown that all involved found the day to be both interesting and inspirational. We covered a wide range of

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Healthcare at Home urged to take immediate action

Today, The Haemophilia Society urged Healthcare at Home to formally investigate the recent appalling service being delivered to patients. In a letter to Darryn Gibson, Chief Executive of Healthcare at Home, Clive Smith, chair of The Haemophilia Society, conveys outrage on behalf of people with haemophilia and their families at

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Join us on Saturday 14 November for our online bleeding disorders conference

We’ve brought together experts in bleeding disorder care to talk about treatment, give practical advice and answer your questions at our annual conference this Saturday. Join us to share knowledge and connect with the UK bleeding disorders community. We’ll be talking about a range of issues, including gene therapy, extended

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Service of Thanksgiving and Remembrance

This year’s Service of Thanksgiving and Remembrance will be streamed live on the St Botolph’s You Tube channel, it will be taking place on Saturday 31st October @ 2.30pm, we would like to reassure those attending either in person or virtually that the congregation will not be visible on the

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Home deliveries from Healthcare at Home – latest update

We have been made aware that some of our members have been experiencing issues with their home deliveries from Healthcare at Home Ltd. Healthcare at Home Ltd has issued a statement on their website regarding these issues and how they are working to resolve them. This statement will be updated

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Announcing Kate Burt as our new Chief Executive

The Haemophilia Society is delighted to today, Monday 28 September, announce the appointment of a new Chief Executive Officer. Kate Burt will take up her role as of 5 October 2020 and brings a wealth of experience of the charity sector at this incredibly formative time for the bleeding disorders

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Announcement on the Clinical Commissioning Policy: Vonicog alfa for the treatment and prevention of bleeding in adults with von Willebrand disease

We are delighted to announce that the NHS England Specialised Commissioning Directorate have approved Veyvondi (Vonicog alfa) for the treatment and prevention of bleeding in adults with von Willebrand disease. Vonicog alfa will be routinely commissioned for treatment of haemorrhage and surgical bleeding, and prevention of surgical bleeding, in adults

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