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Call for volunteers from the EHC

The European Haemophilia Consortium (EHC) has launched a call for volunteers to join its Women and Bleeding Disorders (WBD) Committee and its Inhibitor Working Group (IWG). Volunteers will be expected to start in January 2020 for three years (until end 2022). These committees have been established to create awareness, recognition, support

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Call for feedback from patients with von Willebrand Disease

NHS England is considering evidence which could lead to the commissioning of a new treatment for adults with Von Willebrand Disease. NHS England believes it has seen enough research from NICE (the National Institute for Health and Care Excellence) to consider making vonicog alpha routinely available and is now looking

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The Haemophilia Society welcomes NHSE announcement on Hemlibra

The Haemophilia Society welcomes NHS England’s announcement today that they will now fund a new treatment for patients with severe Haemophilia A called Hemlibra (emicizumab). Prior to this, Hemlibra was only available to patients with inhibitors, but the new funding announced today means that more people will have access to

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Letter from the APPG to Amber Rudd

Letter signed by members of the Haemophilia and Contaminated Blood APPG to Amber Rudd, Secretary for Work and Pensions, calling for a meeting to voice the needs of members of the affected community. Yo can read the letter in in full here

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HQ Summer issue out now!

HQ is our members magazine, which you will receive in hard copy twice a year when you join the Society. In this issue, you can read all about the inspiring and successful fundraising our supporters have achieved, we find out all about our new youth ambassadors, have updates from our

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APPG holds evidence sessions in Parliament

Over the course of the last six weeks, the All-Party Parliamentary Group (APPG) on Haemophilia and Contaminated Blood has held a series of evidence sessions in Parliament on Access to Treatment for people with bleeding disorders. Parliamentarians including Sir Peter Bottomley MP, Diana Johnson MP, Liz McInnes MP and Baroness

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