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Service of Thanksgiving and Remembrance

This year’s Service of Thanksgiving and Remembrance will be streamed live on the St Botolph’s You Tube channel, it will be taking place on Saturday 31st October @ 2.30pm, we would like to reassure those attending either in person or virtually that the congregation will not be visible on the

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Home deliveries from Healthcare at Home – latest update

We have been made aware that some of our members have been experiencing issues with their home deliveries from Healthcare at Home Ltd. Healthcare at Home Ltd has issued a statement on their website regarding these issues and how they are working to resolve them. This statement will be updated

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Announcing Kate Burt as our new Chief Executive

The Haemophilia Society is delighted to today, Monday 28 September, announce the appointment of a new Chief Executive Officer. Kate Burt will take up her role as of 5 October 2020 and brings a wealth of experience of the charity sector at this incredibly formative time for the bleeding disorders

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Announcement on the Clinical Commissioning Policy: Vonicog alfa for the treatment and prevention of bleeding in adults with von Willebrand disease

We are delighted to announce that the NHS England Specialised Commissioning Directorate have approved Veyvondi (Vonicog alfa) for the treatment and prevention of bleeding in adults with von Willebrand disease. Vonicog alfa will be routinely commissioned for treatment of haemorrhage and surgical bleeding, and prevention of surgical bleeding, in adults

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School and Bleeding Disorders webinar.

Join us on Thursday 13 August at 7pm for our School and Bleeding Disorders webinar. We have three experts joining us for our school education session: a haemophilia nurse, teacher/youth ambassador and parent who will share their experiences with you.   This webinar will help you prepare for your child’s return

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OFFICE UPDATE

Due to ongoing government guidance around working safely during COVID-19 our staff continue to work from home to ensure that everyone is kept safe.   We currently have a reduced team working and are still contactable via our usual phone numbers and email addresses.    We continue to offer support and

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EHC Statement on Desmopressin Nasal Sprays availability

Late last week, we were informed of an international recall of all Ferring Parmaceuticals Limited nasal sprays containing desmopressin, including Octim®, Octostim®, Desmospray®, DDAVP Spray®. This spray is typically used in people with Von Willebrand Disease types 1 and 2 (except 2B) and mild haemophilia. It is also used for women with heavy menstrual

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