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HQ Summer issue out now!

HQ is our members magazine, which you will receive in hard copy twice a year when you join the Society. In this issue, you can read all about the inspiring and successful fundraising our supporters have achieved, we find out all about our new youth ambassadors, have updates from our

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APPG holds evidence sessions in Parliament

Over the course of the last six weeks, the All-Party Parliamentary Group (APPG) on Haemophilia and Contaminated Blood has held a series of evidence sessions in Parliament on Access to Treatment for people with bleeding disorders. Parliamentarians including Sir Peter Bottomley MP, Diana Johnson MP, Liz McInnes MP and Baroness

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BBC2 documentary on vCJD

Following last night’s BBC2 documentary on vCJD – Mad Cow Disease: The Great British Beef Scandal – we are seeking advice on what this means for our community, and we will share any information with you as soon as possible. The documentary aired on BBC2 last night at 9pm. You

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Getting information from UKHCDO – an update

The United Kingdom Haemophilia Centre Doctors’ Organisation (UKHCDO) has produced an explanatory document about patient information recorded on the National Haemophilia Database (NHD). It also provides a history of the NHD and its development, provides clarity on the information held and any limitations where appropriate. The explanatory document is now

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Contaminated blood support scheme: PM must act

Prime Minister Theresa May has been urged to intervene to improve the financial support system for people infected and affected by the contaminated blood scandal. The Government had promised to address campaigners’ concerns about inequalities in the Infected Blood Payment Scheme before the Infected Blood Inquiry began its witness hearings

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Response to concerns about Emicuzumab

Recently reports have been shared on social media about deaths relating to a new treatment for haemophilia A, Emicuzumab (Hemlibra). This has been used in the UK for treatment of people with Haemophilia A and inhibitors since the start of last year. Earlier this year its license was extended to cover prophylaxis for people

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The Haemophilia Society’s response to the Government’s announcement on changes to the contaminated blood support schemes

The Government’s announcement that an extra £30m is to be allocated to contaminated blood support schemes is to be welcomed, but it is not yet clear if it measures up to the demands of The Haemophilia Society and other campaign groups.   The Society and 11 other campaigners, plus peers and MPs

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