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The Haemophilia Society welcomes NHSE announcement on Hemlibra

The Haemophilia Society welcomes NHS England’s announcement today that they will now fund a new treatment for patients with severe Haemophilia A called Hemlibra (emicizumab). Prior to this, Hemlibra was only available to patients with inhibitors, but the new funding announced today means that more people will have access to

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Letter from the APPG to Amber Rudd

Letter signed by members of the Haemophilia and Contaminated Blood APPG to Amber Rudd, Secretary for Work and Pensions, calling for a meeting to voice the needs of members of the affected community. Yo can read the letter in in full here

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HQ Summer issue out now!

HQ is our members magazine, which you will receive in hard copy twice a year when you join the Society. In this issue, you can read all about the inspiring and successful fundraising our supporters have achieved, we find out all about our new youth ambassadors, have updates from our

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APPG holds evidence sessions in Parliament

Over the course of the last six weeks, the All-Party Parliamentary Group (APPG) on Haemophilia and Contaminated Blood has held a series of evidence sessions in Parliament on Access to Treatment for people with bleeding disorders. Parliamentarians including Sir Peter Bottomley MP, Diana Johnson MP, Liz McInnes MP and Baroness

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BBC2 documentary on vCJD

Following last night’s BBC2 documentary on vCJD – Mad Cow Disease: The Great British Beef Scandal – we are seeking advice on what this means for our community, and we will share any information with you as soon as possible. The documentary aired on BBC2 last night at 9pm. You

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Getting information from UKHCDO – an update

The United Kingdom Haemophilia Centre Doctors’ Organisation (UKHCDO) has produced an explanatory document about patient information recorded on the National Haemophilia Database (NHD). It also provides a history of the NHD and its development, provides clarity on the information held and any limitations where appropriate. The explanatory document is now

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