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All Posts by Jess Milton

Initial Diagnosis Report Launched

Early this year The Haemophilia Society began a project to understand the experiences of families when their child is initially diagnosed with a bleeding disorder. Drawing on some of the stories shared through our #bruisednotabused campaign we reached out to our community to ask them to share their experiences. We

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Monthly updates launched

So much happens here at The Society, and we want to share all of these great things with you more regularly. That’s why have decided to produce a monthly update so that we can keep you in touch with all our news, activities and events. You can read our update

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Society Chief Executive writes in the Times

After more than three decades we have, at last, a full public inquiry into the infected blood scandal which has led to the deaths of more than 2,500 people and caused incalculable suffering to thousands more. It is not just the numbers of people involved that are shocking, it is

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Public Inquiry into infected blood opens

After so many years of campaigning across our community, today sees the opening of the Public Inquiry into infected blood. At this time we think of those who are not here with us today to witness this, we think of those who are living with the complex challenges these infections

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Book now for our member conference and AGM

All members are invited to join us for our two-day mini congress including AGM and gala dinner on Saturday & Sunday 17/18 November 2018 in Birmingham. Enjoy sessions on a wide range of relevant topics, meet others with bleeding disorders and find out the results of trustee elections for 2018. A

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VWD Guidelines development – have your say

Have you got von Willebrand Disease (VWD), or do you care for someone with VWD? Are you a health professional working with people with VWD? If you answered yes to any of these questions, the World Federation of Hemophilia invites you to complete their stakeholder survey and have your say

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Announcement from NHSE on Inhibitor Treatment

NHSE has announced that Emicizumab (marketed as Hemlibra) can be provided to Haemophilia A patients with current inhibitors under the Framework Agreement for the supply of products for the treatment of bleeding disorders as an in year service development. From 1st July it will be available for routine prophylaxis to Haemophilia

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