Written by Daniel Barnes
Blog update from our Summer Camp 2017
As part of our amazing Summer Camp, our young intrepid campers are trying to blog…Read more
The Society and campaigners protest outside Downing street calling for an inquiry into Contaminated Blood scandal
The Haemophilia Society and campaigners today protested outside the Department of Health calling for…Read more
UKHCDO releases statement on reported cases of sporadic CJD in the UK
The UKHCDO has published this leaflet following reports in an American Journal that two female patients…Read more
Enter your sporting photo into Alex Dowsett’s Little Warriors competition
Are you a Little Warrior? Why not take part in Little Bleeders very first photography…Read more
Ladies Festival raises almost £3k for The Haemophilia Society
Dancing, sumptuous dining and fun were had by all at the recent masonic Ladies Festival…Read more
A day in the life of a vWD woman: Ria’s story
A day in the life of a vWD woman: Ria’s story The theme of this…Read more
Haemnet London 2020 project: Share your experiences of haemophilia care to raise money for The Society
Haemnet support health & social care professionals so that excellent care becomes the everyday experience…Read more
Cancelled: APPG meeting March 22 2017
Following reports of an incident in the Westminster area, we’re sorry to say that this…Read more
Bears4Rare: experts call on government to provide fair and fast access to treatments for rare disease patients
Rare conditions affect approximately 1 in 17 people in the UK.1 Although they are living…Read more
UK launches FibCLOT®▼ LFB’s human fibrinogen concentrate
LFB Biopharmaceuticals announced today the UK launch of FibCLOT, its human fibrinogen concentrate. This follows…Read more
Go for GOLD at the Olympic Park: Take part in the UK’s highest freefall abseil!
Looking for a different New Year challenge? Want to get your adrenaline pumping and do something…Read more