Living with a bleeding disorder is never black and white. And it’s not all blood-red either. Life after diagnosis may start out hard, but we learn by doing, making mistakes, asking questions and surrounding ourselves with people who understand.
Then, slowly, it just becomes life again. Because a bleeding disorder shouldn’t define who we are, what we do or how we feel.
Through our community, we find the freedom, opportunity and fun in life after diagnosis.
What do you need help with today?
My child is newly diagnosed
Finding out that you or your child has a bleeding disorder can be a stressful experience, and we’re here to help you to make sense of it all.
Newly Diagnosed
Someone I know has a bleeding disorder
There are lots of different bleeding disorders. Find out more about the different types of bleeding disorders and the treatment options available.
Diagnosis & Treatment
I need help & support
All you need to know to keep fit and healthy with a bleeding disorder and the support and benefits available to you and your family.
Day-to-day Living
Latest news at the Haemophilia Society
29 Jul 22
Infected Blood Inquiry interim report recommends interim compensation
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07 Jul 22
Putting Access to Physiotherapy on the Agenda in Parliament
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06 Jul 22
First Gene Therapy Treatment for Haemophilia to be Licensed
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21 May 22
European Conference Discusses Better Support For Women
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Upcoming & recent events at the Haemophilia Society
Big Red Bridge Walk London
Join us as we walk along the River Thames and across eight of its iconic bridges: Westminster, Hungerford,…
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Big Red Bridge Walk Glasgow
In association with Haemophilia ScotlandWe’ve teamed up with Haemophilia Scotland to bring you the biggest…
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Big Red Bridge Walk Derry
Join us for our first-ever Big Red Bridge Walk in Derry! The Big Red Bridge Walk Derry will…
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01 Oct 22 at 9:30am to 5:00pm
Haemophilia Live
Come along to our inaugural event devoted entirely to haemophilia. You will hear the latest…
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Service of Remembrance and Thanksgiving
For all those people with inherited bleeding disorders who have died due to their treatment…
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Members Only
Save the Date
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28 Jan 23 at 9:30am to 5:00pm
VWD Day
VWD Day takes place in Southampton on Saturday 28 January 2023. For the first time,…
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Members Only
Save the Date
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25 Feb 23 at 9:30am to 5:00pm
Rare & Unclassified Bleeding Disorders Day
People affected by rare or unclassified bleeding disorders can feel some of the most isolated…
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Members Only
Save the Date
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04 Mar 23 at 9:30am to 5:00pm
Talking Red Live
Thousands of women struggle with common symptoms – such as heavy periods and frequent bruising…
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Newly Diagnosed Families Weekend – Bolton
Our Newly Diagnosed Families weekends (NDW) are free events that support parents who have recently found out…
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Members Only
Save the Date
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26 Jul 23 - 30 Jul 23 at 2:00pm
Youth Camp: 26-30 July 2023
If you have a bleeding disorder or you are a sibling of someone who does,…
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Newly Diagnosed Families Weekend – Brentwood
Our Newly Diagnosed Families weekends (NDW) are free events that support parents who have recently found out…
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