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The Haemophilia Society is the only UK-wide charity for all those affected by a genetic bleeding disorder

We help people with genetic bleeding disorders to lead fulfilling lives, make informed choices and to support and inspire others.

This website is for information purposes only and is not a substitute for professional medical, diagnosis or treatment advice.

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What do you need help with today?

My child is newly diagnosed

Finding out that you or your child has a bleeding disorder can be a stressful experience, and we’re here to help you to make sense of it all.

Newly diagnosed

Someone I know has a bleeding disorder

There are lots of different bleeding disorders. Find out more about the different types of bleeding disorders and the treatment options available.

Diagnosis & treatment

I need help & support

All you need to know to keep fit and healthy with a bleeding disorder and the support and benefits available to you and your family.

Day to day living

Our News

LATEST NEWS AT THE HAEMOPHILIA SOCIETY

Healthcare at Home – product recall stateme...

1 April 2021 BY

Healthcare at Home have been advised by the Medicines and Healthcare products Re...

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Take part in the Coping with COVID-19 Communi...

18 March 2021 BY

This survey aims to examine the impact of the current COVID-19 pandemic on the m...

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The Haemophilia Society responds to NICE Cons...

11 March 2021 BY

Starting in 2020, NICE has been running a series of consultations look...

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Race around the world with our Yorkshire loca...

9 March 2021 BY

Our Yorkshire local group has recently reformed with an aim to raise awareness ...

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Upcoming & Recent Events at the Haemophilia Society

UPCOMING EVENT
15 April 2021 at 4:00 pm Virtual

Live Q&A – Jack Bridge and Clive Smith

The Haemophilia Society invites you to a live Q&A on Thursday 15 April at 4pm with: Celebrity ambassador, Jack BridgeChair of trustees, Clive SmithHosted by our president Baroness Molly Meacher

27 June 2021

Parallel

28 July 2021 Derby, DE4 4LS

Youth Camp 2021 – Fully booked

My name is Ethan and I am 19 years old. I was born with severe Haemophilia a, but I haven’t let that stop me in life. In my spare time I love to go out road cycling and keeping fit, in the past I have competed at national levels through hard work and determination.

Ethan

Archie’s a great role model for others as he’s never let haemophilia stop him. People are always amazed to find out about his haemophilia because he’s so sporty and active.

Archie

I have learnt that you can’t really let a bleeding disorder stop you from doing what you want to do, and if not, there is always a way around things. I have recently been nominated as the Youth Ambassador for the Yorkshire Bleeding Disorders Group and hope to connect with other young people through that.

Zoe

Become a member of The Haemophilia Society free today. Fill in a simple form and we will send out a membership pack to you.

Join us now

Push for fairness for people with bleeding disorders affected by contaminated blood. Join us in demanding just support packages.

Take action

Our members and supporters do amazing things to raise funds for us. Challenge yourself or team up with friends to raise money.

Sign me up

We can be found on all the usual online channels – Twitter, Facebook, e-mail. But if that’s all a bit too high-tech, we’re also on the end of the phone.

Get connected

About bleeding disorders

Understanding Haemophilia & Other Bleeding Disorders

People with bleeding disorders, have a condition that means the blood can’t clot properly. Those with bleeding disorders experience bleeding for longer and may sometimes experience spontaneous bleeds into joints, muscles and soft tissues. Some of the most common bleeding disorders include: Haemophilia A | Haemophilia B | von Willebrands

Browse bleeding disorder information