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The Haemophilia Society is the only UK-wide charity for all those affected by a genetic bleeding disorder

We help people with genetic bleeding disorders to lead fulfilling lives, make informed choices and to support and inspire others.

This website is for information purposes only and is not a substitute for professional medical, diagnosis or treatment advice.

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What do you need help with today?

My child is newly diagnosed

Finding out that you or your child has a bleeding disorder can be a stressful experience, and we’re here to help you to make sense of it all.

Newly diagnosed

Someone I know has a bleeding disorder

There are lots of different bleeding disorders. Find out more about the different types of bleeding disorders and the treatment options available.

Diagnosis & treatment

I need help & support

All you need to know to keep fit and healthy with a bleeding disorder and the support and benefits available to you and your family.

Day to day living

Our News

LATEST NEWS AT THE HAEMOPHILIA SOCIETY

Update to Hemlibra (emicizumab) Convenience K...

1 March 2021 BY

Following approval from the European Medicines Agency (EMA) last August, Roche-C...

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Share your thoughts on the services for peopl...

1 March 2021 BY

Do you have or care for someone with a bleeding disorder? How can we improve you...

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Show your support on Rare Disease Day 2021...

28 February 2021 BY

In the UK there are over 36,000 people with a rare genetic bleeding disorder suc...

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Supporter takes on 300,000 step challenge for...

23 February 2021 BY

I’m taking on the challenge to walk 300,000 steps in March to raise money for ...

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Upcoming & Recent Events at the Haemophilia Society

UPCOMING EVENT
20 March 2021 at 4:55 pm Your own chosen route

Virtual Big Red London Bridge Walk

The First Virtual Big Red London Bridge Walk Unite with us on Saturday 20 March and others up and down the country walking for our community across paths, pavements, parks or pebbles.  

27 June 2021

Parallel

28 July 2021 Derby, DE4 4LS

Youth Camp

My name is Ethan and I am 19 years old. I was born with severe Haemophilia a, but I haven’t let that stop me in life. In my spare time I love to go out road cycling and keeping fit, in the past I have competed at national levels through hard work and determination.

Ethan

Archie’s a great role model for others as he’s never let haemophilia stop him. People are always amazed to find out about his haemophilia because he’s so sporty and active.

Archie

I have learnt that you can’t really let a bleeding disorder stop you from doing what you want to do, and if not, there is always a way around things. I have recently been nominated as the Youth Ambassador for the Yorkshire Bleeding Disorders Group and hope to connect with other young people through that.

Zoe

Become a member of The Haemophilia Society free today. Fill in a simple form and we will send out a membership pack to you.

Join us now

Push for fairness for people with bleeding disorders affected by contaminated blood. Join us in demanding just support packages.

Take action

Our members and supporters do amazing things to raise funds for us. Challenge yourself or team up with friends to raise money.

Sign me up

We can be found on all the usual online channels – Twitter, Facebook, e-mail. But if that’s all a bit too high-tech, we’re also on the end of the phone.

Get connected

About bleeding disorders

Understanding Haemophilia & Other Bleeding Disorders

People with bleeding disorders, have a condition that means the blood can’t clot properly. Those with bleeding disorders experience bleeding for longer and may sometimes experience spontaneous bleeds into joints, muscles and soft tissues. Some of the most common bleeding disorders include: Haemophilia A | Haemophilia B | von Willebrands

Browse bleeding disorder information