On 31 October 2020 we held our first Newly Diagnosed virtual event. We didn’t want our new families to miss out on this educational and informative event due to the ongoing Covid-19 restrictions.
This event, designed to support parents who have recently found out their child has a bleeding disorder, brings together experts in bleeding disorders care so families get the help they need to ensure their child gets the best possible care.
The presentations included:
- Overview of bleeding disorders by Dr Kate Khair, Haemnet
- How can my haemophilia nurse support us? by Julia Spires, Great Ormond Street Hospital
- Physiotherapy and its benefits by Sarah Jones, Cardiff and Vale University Health Board/ Hcpa
- Stress management for parents of a child with a bleeding disorder by Martin Sugg, Psychotherapist
If you would like to watch our speaker presentations, please register on the link below. https://col.eventsair.com/nwd/ndw2020/Site/Register
We hope to be able to run our newly diagnosed weekends again in summer 2021
Our NDWs are free to our members and open to families who have a child aged 0–5 years and recently diagnosed with a bleeding disorder. These weekends are very popular and there is often a waiting list.
If you would like to attend you can also let us know that you’re interested by emailing firstname.lastname@example.org