We’re conducting a survey among people aged 16+ with a bleeding disorder who have an inhibitor and their family members.
An inhibitor is a type of antibody that prevents factor replacement treatment from working. When an inhibitor develops, it binds to factor concentrates such as factor VIII or factor IX, stopping them from working and making bleeding more difficult to treat. Please only complete this survey if you are living in the UK and you or someone you care for has an inhibitor. If you are unsure if you have an inhibitor, it is unlikely you do!
We will use the survey information to campaign for people with bleeding disorders and inhibitors and to help develop resources, information and services specifically for people affected by an inhibitor, so taking part will help you and others in our community.
The survey will take about 20 minutes to complete and you can answer the questions in more than one sitting if you wish. It is anonymous and all answers will be treated in strictest confidence.
Please click on the link for more information and to begin the survey: surveymechanics.com/s/Inhibitorsurvey
Please complete the questionnaire by Sunday 20 May.
Thank you in advance for your contribution to this important survey.