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Response to the Terms of Reference for the Inquiry Consultation

Today is the final day for submissions to the consultation on the terms of reference for the statutory public inquiry into contaminated blood and blood products.

The Haemophilia Society was keen to contribute in a constructive, effective and proactive manner to this consultation and ensure the views of our members were taken into account.

We endeavoured to reach out to our members as well as the wider community affected by contaminated blood products to ensure our response reflected this range of views.

As well as our series of roadshows where we were able to speak directly to members on their expectations from the inquiry. We are grateful to members and campaigners who shared their views and knowledge through social media and by contacting us by email and phone.

We have urged that an effective Inquiry should not be sacrificed to achieve expediency.  The views we received from people with bleeding disorders and their families are that they have waited an  unacceptably long time for this Inquiry to commence and they wish it to be comprehensive, effective and all-encompassing.

Our final submission is below:

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Jefferson Courtney