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What We Do

What we do

We are the only UK-wide charity for all those affected by a genetic bleeding disorder; a community of individuals and families, healthcare professionals and supporters.  

For almost 70 years we have campaigned for better treatment, been a source of information and support, and raised the awareness of bleeding disorders.   

We want to ensure that everyone affected by a bleeding disorder: 

  • Lives the best life that they can  
  • Never feels alone or isolated  
  • Feels empowered and confident  

More than 30,000 men, women and children in the UK have a diagnosed bleeding disorder, and the number rises every year. Membership of The Haemophilia Society is free and open to all. 

Our peer support through local groups around the UK, global family network, and online community, offers friendship and a listening ear when needed, as well as enabling people to share their views and experiences. By bringing people together for information and support at events tailored to all life stages, we amplify their voices to reduce isolation and influence government, welfare and health care policy.  

Our community are at the heart of everything we do – we work collaboratively with members and health professionals to ensure we make decisions influenced by their valued input and direction.