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WHO WE ARE

ABOUT US

WHO WE ARE

WE ARE THE HAEMOPHILIA SOCIETY

We are the only UK wide charity for everyone affected by a bleeding disorder: a community of members, supporters and healthcare professionals. Our work is driven by a small staff team, based in London and working alongside volunteers from all over the UK. We are governed by a board of trustees.

As a health charity, we work to provide easy access to information and opportunities, influence national policy and practice to make the care and treatment of bleeding disorders consistent, effective and accessible to all and enable the voices of all people with bleeding disorders to be heard.

Our strategy sets out our goals, aspirations and plans for 2015-18. It aims to make sure that everything we do improves the lives of people affected by a bleeding disorder in the UK today so we can continue to provide help and support for many years to come.

The strategy and plan was launched at our annual general meeting (AGM) in October 2013, and reflects the needs and concerns of members and local groups. We worked with our members who attended our AGM and conference in November 2014 to refine and prioritise our activity and services in the coming years.

HISTORY

VISION

Wellbeing for everyone with a bleeding disorder.

MISSION

For all those affected by bleeding disorders, we will provide information and services, build community and mutual support, influence government health and welfare policies, including advocating for those impacted by contaminated blood, and involve people in making decisions about their own care.

VALUES

We try to relate everything we do to the needs of everyone affected by bleeding disorders, to act with integrity, honesty and transparency, to make the best use of our resources, and to be inclusive and independent.

OUR PEOPLE

CEO Liz Carroll works with a talented team of professionals to accomplish The Haemophilia Society’s goals and mission. Our small staff team work hard from our office base in London, shaping the Society’s future and providing services and support to members around the UK. 

Jefferson Courtney

Policy and Public Affairs Manager

Anila Babla

Communications Officer

Lorna McKay

FUNDRAISING CO-ORDINATOR

James Hunt

HEAD OF FUNDRAISING

Elisha Richardson

Receptionist & Office Administrator

Rose Ozdemir

Services Co-ordinator

Christina Burgess

Head of Membership & Planning

Fiona Donoghue

Office Manager & PA to CEO

Angela Spencer

Finance Assistant

Cynthia Creavalle

Finance Officer